I am not my brain

Vintage clock with white flowers

“What’s wrong with my brain?” doesn’t automatically mean, “Is my mind, my soul therefore broken as well?”

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The day I stopped being weak

Tired person running

You never know how strong you are until being strong is the only option you have. How true is this? You lose a parent, a brother or sister, or someone else you dearly loved and yet, time goes on. Time has to go on. For your family, for yourself. Years later you realise you went […]

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Why I should be a brainiac, but I’m not

OMG shock and awe

It happened again. Just when I attempted to maximise my brain, it decided to take over and run the show. It’ll be fun, it said. But, it was so not pretty. Not even by a long mile. With so much physical pain and hence collected a fair amount of neurology-related knowledge due to life with MS, […]

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Where is my left cheek?!

Fatigued girl hands on her face

Trigeminal neuralgia feels like a vicious affair, and it is still hard to know who came first, TN or MS. Being a lover of Shakespearean drama, they would tell you they arrived around the same time.

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Humans Multiple Sclerosis

When it comes down to awareness-raising and thought-provoking initiatives in the health charity sector, fresh ideas are often hard to find. Not so for Joan, a dear friend of mine. After her original Selfie Book idea created by her regional MS branch for World MS Day in 2015, Joan wanted to expand this Facebook idea and create a book […]

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0% responsibility – 100% accountability

Today, I joke about not being perfect or about my mind behaving like a repetitive software update that refuses to stick after a few busy days. I may add that my bones rattle and that I have a Club Med-type relationship with three different hospitals, my primary care physician and my pharmacy. Or, I forget my name, fall asleep at fancy receptions, need an hour to cut three peppers and two onions and sometimes need to nag to myself to get things done.

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MS News: July 2016

The latest news on MS research, clinical trials, treatments, mental health, diet, exercise, lifestyle as well as business news and videos.

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Multiple Sclerosis: The First F____ed Fortnight

Originally posted on Republic of Emma:
The early days are the most ‘challenging’ as in it is like a dirty dangerous whirlwind where emotions, words and all sense of self goes whizzing around. The day I walked into Mullingar Accident and Emergency room, I was wearing my jeans and a t-shirt that had seen better…

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MRI scans, hope or defeat

A war zone. It sounded like a war zone. Sound effects of an AK47 gun amid MRI vibrations and banging noises usually taking place on construction sites. Tinnitus adding an overlay I can miss like never before. Magnetic resonance imaging is a godsend to ill people. In regards to MS, it gives a clear view […]

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Making Sense of MS

One of the many things people newly diagnosed with MS (PwMS) look for is information on what their illness will have in store for them. From thinking back to when I was discovering what MS might be like, I remember an overwhelming feeling of “where on earth do I even begin?” when I finally went […]

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That daily fight

Sometimes it seems that the hardest battles you will ever have to fight will be the battles with yourself. You strive to get through hours of hard grinding for upcoming exams, or you want to get fit after Christmas and New Year’s parties. We’ve all been there, and the older you get and the harder […]

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World MS Day 2012: Letter to my newly diagnosed self

Two years ago, the organisation of World MS Day, asked us to write a letter to our newly diagnoses self, no matter how long ago we were diagnosed: “If asked to write a letter to yourself today, to be read on the day you were first diagnosed, what would you say? Would you tell yourself […]

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World MS Day 2012: Letter to my newly diagnosed self

Two years ago, the organisation of World MS Day, asked us to write a letter to our newly diagnoses self, no matter how long ago we were diagnosed: “If asked to write a letter to yourself today, to be read on the day you were first diagnosed, what would you say? Would you tell yourself […]

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