The truth about Cinderella

Some days I go through life like a half-baked version of Cinderella. There’s promise at 8 AM, but by 11 AM my fairytale book is closed until further notice. In the background, that all-important clock keeps ticking forward, but my body is in a rut: sleeping, eating, exercising, resting, more eating, more sleeping and back again. And […]

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While I was sleeping…

“If asked if I want to feel and be the ‘me’ before my diagnosis, I would reply this, “Of course I wish to be that person again, only, I simply cannot remember what ‘normal’ feels like.” Fatigue significantly interfered with daily life very early on in my road to diagnosis and was one of the reasons why, eventually, I was forced to retire four and a half years later.”

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How (not to) be sick!

That’s me. I forget how to be sick. The fact that physically I am crumbling under a lot of neuropathic pain, can’t frown my forehead into cute wrinkles, have no feeling on the top of my scalp, have constant bees in my ears of tinnitus, stabbing facial pain and intense fatigue, is something I refuse to show anyone carrying a medical degree. It’s a survival instinct of sorts.

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Are you Cinderella yet?

“Seeing the world with fresh eyes every morning is something other people do. I try to get my innate sense of curiosity and wonder going when I wake up, but my enthusiasm only reaches as far as, “Oh look, both my eyes are open!” I re-evaluated my night-time activities, so, as those dubious sleep and pretend-to-be-awake-games only lead to more excessive MS fatigue.”

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Detailed Trigeminal Neuralgia info

Types ° Typical TN ° Atypical TN ° Pre-TN ° Multiple-sclerosis-related TN ° Secondary TN ° Post-traumatic TN (trigeminal neuropathy) ° Failed TN

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Medical terminology?

“Because fatigue does not show a relationship with how many plaques your MRI shows, it is often hard to gauge, even though it does predict later brain atrophy in the posterior parietal cortical lobes. Also, MS fatigue comes in two different varieties, the primary and secondary type of fatigue.

During functional MRI scans for physical and cognitive tasks, it was clear that inefficient reorganization of a damaged central nervous system took place. MS fatigue is also a medical fact, so, and is associated with other neurological symptoms.”

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Five-year plan

Bad tidings always happen when you least expect it. Your plans for tonight, next week or the following year get punched right in the stomach and you have to regroup. Not only does rearranging your life involve more people than just yourself; your family, friends and colleagues need to find out where you and your […]

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The duplicity of MS

Summer has finally arrived in Ireland. After what seemed a prolonged autumn and/or winter, we saw summer marching in as if tomorrow might never come. Seeing we are a breed of people who can endlessly talk about the weather, we find fault in it as soon as it happens, only to spin more hours of […]

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In the arms of Morpheus

Ah Dublin, where everything is fancy and fair, where the sun can wipe out the feel of cool grey stones of its houses and where things just get better by hearing the sound of a jig or reel. Not so this morning. Fancy and fair… only if you would let me stay under my duvet. […]

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The road well traveled

It’s always nice when people see positive changes in you, especially when they took a long time to manifest. A famous quote goes that “happiness is a journey, not a destination” and there is definitely some truth in that. Despite a few minor setbacks on a health level, I’ve sailed through my main illness this […]

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