It happened again. Just when I attempted to maximise my brain, it decided to take over and run the show. It’ll be fun, it said. But, it was so not pretty. Not even by a long mile. With so much physical pain and hence collected a fair amount of neurology-related knowledge due to life with MS, […]Read More
To this day, 13 years post-diagnosis, I am still prone to having conscious/unconscious battles. I am past the “woe is me” period that tried to knock me sideways at first, but I still have pacing issues that lay bare any ineffectiveness I attribute to myself. We all want the opportunity to stay active human beings. Not wanting to be is foreign to my character and it quite possibly will be for as long as I live. Still studying is just one part of that action plan.Read More
Note: I am not a medical professional nor do I intend to provide any medical advice to anyone. Please see your physician or neurologist if you have any health care concerns. My intention is to provide accurate information from the perspective of an informed patient. Sometimes it’s hard to pin down which illness you have, […]Read More
Seeing your neurologist can often make you feel anxious or afraid to speak up. Each appointment should be about exploring options, not about being bulldozed by a standardised litany of things you don’t want. Going in prepared will make you feel more at ease, so why not make a list of vital questions and things you […]Read More
“Other disorders that cause facial pain should be ruled out before trigeminal neuralgia is diagnosed. Some disorders that cause facial pain include postherpetic neuralgia (nerve pain following an outbreak of shingles), cluster headaches, and temporomandibular joint disorder (TMJ, which causes pain and dysfunction in the jaw joint and muscles that control jaw movement). Most people with TN eventually will undergo a magnetic resonance imaging (MRI) scan to rule out a tumour or multiple sclerosis as the cause of their pain.”Read More
That’s me. I forget how to be sick. The fact that physically I am crumbling under a lot of neuropathic pain, can’t frown my forehead into cute wrinkles, have no feeling on the top of my scalp, have constant bees in my ears of tinnitus, stabbing facial pain and intense fatigue, is something I refuse to show anyone carrying a medical degree. It’s a survival instinct of sorts.Read More
“Because fatigue does not show a relationship with how many plaques your MRI shows, it is often hard to gauge, even though it does predict later brain atrophy in the posterior parietal cortical lobes. Also, MS fatigue comes in two different varieties, the primary and secondary type of fatigue.
During functional MRI scans for physical and cognitive tasks, it was clear that inefficient reorganization of a damaged central nervous system took place. MS fatigue is also a medical fact, so, and is associated with other neurological symptoms.”Read More
“‘How far do baby germs fly?’ I agree with my lateral sort of thinking in this case. Wondering how far people’s sneezes fly is usually not something I occupy myself with, unless of course when I’m sitting in warm surroundings where endemic bugs tend to live.”Read More
“Instead of going into the possibility of ending their life in a wheelchair, I refer to the opposite side of the scale. When they say “But 25% of people with MS will end up in a wheelchair!” I say “Perhaps, but that means that 75% of people with MS will not end up in one at all!”Read More
19th century Until the early years of the 19th century, physicians relied on superstition, hearsay, and “the wisdom of the ancients” to care for the sick. Medical ideas were not scientifically tested. Even so, physicians were often good observers and we can look back today and identify people who undoubtedly had MS from descriptions written […]Read More
20th century In the 19th century, scientists first learned that bacteria cause many diseases. As the 20th century began, they discovered even smaller organisms, viruses, and developed techniques for growing and studying bacteria and viruses in the laboratory. This later led to research on viral causes of MS. In 1906, the Nobel Prize for Medicine […]Read More
Journal of Neurology & Neurosurgery Journalwatch Neurology Netmed Neurology Neurology Care Neuronetwork Ireland Neuroscience Ireland Updated: September 8th, 2017 ©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided […]Read More
Doctors divide the symptoms into three groups: primary, secondary, and tertiary. Primary symptoms come from damage to the protective sheath around the nerves in your spine or brain. The damage is called demyelination. It causes scarring, which makes it harder for signals to travel between the brain and the body. This process can lead to bladder […]Read More
In a world of selfies and size zero clothing, a negative body image can weigh heavily on healthy people, never mind disabled people. Being ill in itself often makes you feel less desirable. In the world of MS, where wheelchairs spread doom and gloom to those that get hit with that tag, body-image requires a whole new level of acceptance.
I firmly believe beauty is limited to time and space. In addition, it only runs skin deep and definitely doesn’t reveal true worth.
With a 14-day delay in posting some positive news about MS, I’d like to offer my apologies and no, I absolutely haven’t forgotten about you. As many people with MS know, May is about the busiest month for those who advocate and volunteer. World MS Day is the main day of the year for MSers, […]Read More
On European level European Committee for Treatment and Research in Multiple Sclerosis European Multiple Sclerosis Platform MS Trust Multiple Sclerosis International Federation Updated: September 8th, 2017 ©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts […]Read More
“For those reasons, the European MS Platform will host its Spring Conference in Ireland on the 8th and the 9th of May in the Gibson Hotel, Dublin. The theme of this year’s conference is “Care where it counts – in the journey with MS.””Read More
“It has been a bit of a hectic, but a great time to write lately. Two bits of fantastic news came my way in regards to my writing, and I’ve been over the moon since.”Read More