Happy World MS Day!
Let's do our bit to advance research until we find a cure. and be part of the solution instead of the problem!
Oh my god, I am (so not) dying!
Life with MS can be awkward. It can be puzzling. It is unquestionably easier said than done. It’s the little things that are happening inside your central nervous system that can make you stumble as if your body reinvents and transforms itself without your consent as if the ‘old’ you is suddenly not good enough anymore.
World MS Day 2016
As each day passes with life with MS, it’s worth noting that quite often, there is still a large information gap to be filled on a medical, emotional, societal and political level. Like many other disease groups, the MS community wants to enhance “Life with…” once a year in a bid to give more insight in what people without MS may otherwise take for granted. In the past, I’ve written about World MS Day on my blog, as well as on the Irish MS Society’s blog and on Novartis’s MS blog. As a person living with the illness day in, day out, highlighting it has become a moral obligation.
World MS Day 2015 Around the World
For the second year in a row, ‘Access‘ is the main topic of World MS Day. Access means a lot of things, so do volunteer in if you want to help others achieve everyday issues. Don’t forget to tag your events with #strongerthanMS and @WorldMSDay. Access Our campaign theme for 2015 is access: access to diagnosis, treatment and support; access to buildings, travel and leisure facilities; and access to education, training and employment. What does access mean? When we talk about equality of access for people with MS we mean access to a social, political and economic life. Equality of access doesn’t just mean physical access to buildings, but access to the same tools, services and facilities that people who do not have MS enjoy. Why access? The barriers…
World MS Day 2015
For more on World MS Day 2015, check these links: Twitter – Tweet @WorldMSDay and/or use #strongerthanMS Facebook – World Multiple Sclerosis (MS) Day Instagram – worldmsday YouTube – World MS Day Pinterest – World MS Day ©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
Irish public transport: access all areas?
"At this stage, I thought “Do I really have to walk with my coffin under my arm to get a seat when I’m physically leaning on a walking stick while holding the handrail as if it was my best friend?”"
World MS Day 2014 in Ireland
Wednesday, May 28th is World MS Day. All over the world, people will organise events, wear orange, volunteer, work and/or attend conferences to raise awareness about an illness that so far, still cannot be cured. While 2014 is the ‘European Year of the Brain,’ this year’s World MS Day theme is ‘Access.’ Whether this means access to information, medication, support, buildings, rights or services, somewhere near you people with MS, their families and MS societies will step forward and express their need for more awareness, understanding and hope that one day, MS will be eradicated for good.