Sleep and MS… It’s what’s (not) happening!

bed bedroom blur clean

Imagine standing all dolled up at the front door, excited to go to the film you’ve been dying to see. That doesn’t do it for you? Replace ‘the film’ by ‘finally buying the boots you’ve been waiting for’ or by ‘rushing out to buy a new power tool’ to finally set up new furniture.

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MS Treatments (2018)

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List of Disease-Modifying Treatments available in 2018. If information is missing or incorrect, please send me a private message.

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MRI scans, hope or defeat

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A war zone. It seemed like a war zone. Sound effects of an AK47 gun amid MRI vibrations and banging noises usually taking place on construction sites. Tinnitus adding an overlay I can miss like never before. Magnetic resonance imaging is a godsend to ill people. In regards to MS, it gives a clear view […]

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Big pharma’s friendship

“I’ve never been one of those anti-pharmaceutical protestors who claim that all medication is just a load of sugar-coated candy. It’s extremely unlikely I’ll ever take sides with those who protest. My view is that sometimes you just have to get off the warpath and look after yourself, even if it means bombarding your body with chemicals in order to get healthy, or better at least.”

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No end to trigeminal neuralgia

“While I’m sitting here, typing fine long sentences, I’m almost giddy of pain, and the left side of my face feels like it’s being pulled way west in the direction of the Atlantic Ocean. My left eye feel like closing up shop for a week or two, and my brain is slowly being stir-fried. Yes, that is what trigeminal neuralgia feels like.”

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Injecting object

“A whole new dictionary was instantly added to my daily vocabulary. Injection needles became syringes. MS relapses, exacerbations. Under the skin, subcutaneous. Daily self-injecting in those early days, often a war with my head, a battle of the wills.”

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A powerful letter to my MS

bouquet of pink flowers beside white ceramic mug

“I thought you were just another Monday morning case when you walked in,” my consultant said, followed by lots of apologies and the promise that I would be very well taken care of.”

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