UNCRPD in Ireland – begging for change

Bad TrumpThe last few months, I’ve read and watched more political news than I could stomach. As a result, shortcut rambling, and buzzwords on Twitter like ‘“tremendous,” “ban,” “wall” and “crooked” now linger in my own vocabulary when I sit down to write. Trying to wipe self-centered #TrumpSpeak from my mind seems futile, though, as each day brings more White House drama.

In contrast, Michelle Obama’s selfless message has always been, “Say something true,” rather than “What will make me sound smart, or witty, or powerful?” or “What does the audience want to hear?” Continue reading “UNCRPD in Ireland – begging for change”

Being real!

Imagine, you’re stuck with me in an utterly crazy, hilarious episode of The Big Bang Theory. Let your imagination run riot, especially since this post has some gender reversal role playing added to it.

There is the ditzy Penny-type of person who thinks along the lines of “Not seeing = questioning = perhaps, possibly, maybe believing”. She thinks it’s hard to value the worth of something when it’s not visible, but given time to learn, she might just try and see things your way.

And then there is Leonard, who knows that he’s not on the same score card as some of his contemporaries. He knows that there is truth in the world, and more importantly, inside him. He says, “Stop questioning me. It exists, I have tangible proof, and I will demonstrate it to you until you let go.”

Continue reading “Being real!”

Man up!

During another stimulating chat with one of my ex-college friends, we found out that both our subject of non-admiration is Michael O’Reilly, one of Ireland’s Olympics boxing competitors who was sent home following a failed doping test during the first week of the Games. He knowingly travelled to Rio and although exempt from fighting for a title already, he kept silent for a week. Eventually, he admitted that he “unintentionally took a supplement that may have contained a prohibited substance given to him by someone unrelated to his team or association.”

Of course, by adding that he was “given the substance by someone else,” MOR is not taking full responsibility for the issue. It would be my understanding, though, that if you want to be an Olympic athlete, you don’t jeopardise your place by “unintentionally” taking things but also, that you need to be aware of everything that goes into your system. Passing on the blame in doping cases often smells like self-pity cloaked in a sense of entitlement and egotism. Continue reading “Man up!”

MS News: July 2016

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Researchers at Queen’s University Belfast have begun a £2 million research programme to investigate reversing the damage caused by Multiple Sclerosis.

Highlight!

  1. Childhood MS: A guide for parents
  2. Queen’s University Belfast Awarded £2M in Bid to Reverse Myelin Damage in MS
  3. Exploring Multiple Sclerosis from the Inside

Continue reading “MS News: July 2016”

Positive MS News: April 2016

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Highlight!

  1. New injectable multiple sclerosis drug given go-ahead 
  2. Smoking Cessation Decelerates Brain Volume Loss in Multiple Sclerosis

Research

  1. Catching glandular fever can prevent multiple sclerosis
  2. Drug boosts myelin regeneration in mice raising hope of future treatments for MS
  3. Gut Bacteria Affects Myelin Content and Induces MS-Like Depression in Mice, Study Reportsultiple sclerosis development risk linked with where you live
  4. The nature of genetic susceptibility to multiple sclerosis: constraining the possibilities
  5. A Way Forward in Treating Primary-Progressive Multiple Sclerosis?
  6. Study Shows Potential of Novel Compound to Treat Multiple Sclerosis
  7. Cytokine Once Thought Only to Promote Inflammation Now Seen to Have Restorative Properties, Too
  8. Multiple sclerosis: A new leap forward?
  9. Technique measures ‘postural sway’ to diagnose neuromuscular disorders
  10. Multiple sclerosis Could Helicobacter pylori provide protection against multiple sclerosis?

Continue reading “Positive MS News: April 2016”

Let’s be frank

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“Life is 10% what happens to you and 90% how you react to it.”
(Charles Swindoll)

If you’re running behind on making a few new year’s resolutions, or perhaps call them ‘new year’s illusions’ by now instead, all is not lost. There are small things you can work on every day of the year.

Given its absurd sense of unpredictability, life with MS is challenging at the best of times. Anything turbulent added to it, and it soon becomes a slalom course with so many twists and turns that each one seems icier than the ones before. Continue reading “Let’s be frank”

Balancing life and a chronic illness

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Imagine this… You are chronically ill, but every time you have a physical setback, your body can heal itself without input from your GP, neurologists, hospitals…

Our mind has the power to heal heartache and/or to show strength in times of need, yet our bodies lack that magnificent paradox. The answer lies in how we look at our emotions; are they your friend, or foe? And how do you view your physical body?

After some feeble attempts trying to write a few paragraphs the past few weeks, I was sent back to the drawing board after each occasion. Not good enough. Already done this. Needs more research. Too tired. Continue reading “Balancing life and a chronic illness”

Time to go our separate ways

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We are having a divorce of sorts.

Because of the ever-growing volume of my blog, and WordPress slower as time goes on, I’ve finally decided it’s time to move blog posts about Ireland, books, writing etc to a new blog called Kick-Ass Ireland! After all, this is a blog about multiple sclerosis with facts, figures, information sheets and my journey with MS.

Ireland, books and writing does take up all my thoughts, but for now posts related to them are better housed elsewhere. The next few weeks will be busy, and I will sit down and put some serious thought in how to expand my blog once those weeks are over. Continue reading “Time to go our separate ways”