Sleep and MS… It’s what’s (not) happening!

bed bedroom blur clean

Imagine standing all dolled up at the front door, excited to go to the film you’ve been dying to see. That doesn’t do it for you? Replace ‘the film’ by ‘finally buying the boots you’ve been waiting for’ or by ‘rushing out to buy a new power tool’ to finally set up new furniture.

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🎀 3443 Needles 🎀

Girl smiling road

🎀 3443 Needles 🎀 2018 Best Blog Post @ Ireland Blog Awards by Ashville Media Group October 26th, 2018 This is my favourite pose. Stretched out, in an apparent hug with what could be the floor or a bed. But, do not be confused, for I am not that hung up about yoga. I wasn’t on that […]

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Why I should be a brainiac, but I’m not

OMG shock and awe

It happened again. Just when I attempted to maximise my brain, it decided to take over and run the show. It’ll be fun, it said. But, it was so not pretty. Not even by a long mile. With so much physical pain and hence collected a fair amount of neurology-related knowledge due to life with MS, […]

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You will survive!

To this day, 13 years post-diagnosis, I am still prone to having conscious/unconscious battles. I am past the “woe is me” period that tried to knock me sideways at first, but I still have pacing issues that lay bare any ineffectiveness I attribute to myself.

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The truth about Cinderella

Some days I go through life like a half-baked version of Cinderella. There’s promise at 8 AM, but by 11 AM my fairytale book is closed until further notice. In the background, that all-important clock keeps ticking forward, but my body is in a rut: sleeping, eating, exercising, resting, more eating, more sleeping and back again. And […]

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Do I have stupid written on my forehead?

Can you recall what life was like before this craziness started? Nope? Neither can I. There is a bit of mental derailing going on right now. Fatigue is back with a vengeance. I am so excellent in not sleeping well, that when I do, it’s a reason to organise a party, or rather, a pyjama […]

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Oh, snap!

“Also, because of the long, warm summer days, Uhthoff’s Symptoms, also referred to as Phenomenon or heat sensitivity, means that I am rather slow in the upstairs department, which eventually lead to predicament B. My days are unquestionably not dull nor tranquil, so.”

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Are you Cinderella yet?

“Seeing the world with fresh eyes every morning is something other people do. I try to get my innate sense of curiosity and wonder going when I wake up, but my enthusiasm only reaches as far as, “Oh look, both my eyes are open!” I re-evaluated my night-time activities, so, as those dubious sleep and pretend-to-be-awake-games only lead to more excessive MS fatigue.”

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The miseducation of…

“Ergo, the benefits of having MS is that I met my other, weaker self, and I learned how to be strong and wise before my own eyes, and at the speed of light. Even E.T. couldn’t follow me on his BMX bike. He tried, the little fella, but lost my phone number. Go figure.”

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Managing fatigue

Dr Anita Rose is a Consultant Neuropsychologist who works across the globe. She created a list on how to manage MS fatigue and this is something to live by. Dr Rose is well-known for her clinical work, research and consultancy to different MS groups. She travels the world speaking of patient, as well as health […]

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Tiredness ≠ fatigue

“Yes, I do know how to read calendars and clocks. I even know how to reset the microwave clock when Ireland changes to a new daylight saving time. Please don’t compare your healthy tiredness to unhealthy fatigue, it’s like comparing microwaves to planet Mars.”

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Slowing down

A friend sent me this picture this evening as a reminder that I need to take a step back from writing, reading, advocating and generally helping others so I can “get better” again. We all know people with MS do not “get better” but I understood his reasoning… I need to sleep more,  relax more […]

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Sleep: a time-consuming commodity

Shoulders back, head held high. Striving to soldier on, wanting to do more. Body says ‘no’, mind perhaps too. This morning I ran into my leading enemy. Not the one I declared war to over some silly misunderstanding when I was 8, nor the one who swore she would never talk to me again when […]

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The worst snoring secret is out!

Apple laptop duvet

So yes… I snore. Considering how much weight I gained after too many MS steroid treatments, one side effect was completely overlooked. I am now the owner of a good habit of sounding like Miss Piggy at night. Steroid treatments should lift energy levels, not snoring. But I do… Like Miss Piggy.

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Side effects?

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2013. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific […]

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In the arms of Morpheus

Ah Dublin, where everything is fancy and fair, where the sun can wipe out the feel of cool grey stones of its houses and where things just get better by hearing the sound of a jig or reel. Not so this morning. Fancy and fair… only if you would let me stay under my duvet. […]

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My tired is tired

Yep… right now I am one hell of a great example of how MS can just snap you right back to when you were first diagnosed, hence the large picture stating that very fact. Remember the days where you were just bed-ridden with lots of symptoms not making sense, and pain that kept you up […]

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That daily fight

Sometimes it seems that the hardest battles you will ever have to fight will be the battles with yourself. You strive to get through hours of hard grinding for upcoming exams, or you want to get fit after Christmas and New Year’s parties. We’ve all been there, and the older you get and the harder […]

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MS fatigue… the invisible monster

MS fatigue… The most common, yet most difficult to detect a symptom in multiple sclerosis. Aside from feeling exhausted, having to explain people over and over how different it is to normal tiredness, you often get a stigma assigned of “yeah, yeah, you’re just being lazy” or “sure, now keep walking, it’s probably not that […]

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