The latest MS news about clinical trials, research, treatments, mental & emotional health, diet and lifestyle, including highlights from Barts MS BlogRead More
Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017 Society Releases Statement on American Health Care Act National MS Society Urges Lawmakers to Oppose American Health Care Act Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part […]Read More
“Is life with MS that comfortable, then? God, no. Absolutely not. You just have to learn how to live with it. Somehow I found a way to tap goodness from those negative connotations because I listened to its actual narrative by refusing to make a mountain out of a molehill. So, even when facial pain is also called “the suicide disease”, even when MS fatigue can knock me senseless in less than five minutes, and even when I feel awful inside despite not looking sick, I am just cool with the whole lot because there simply is no other way.”Read More
Check June’s main MS news stories and do not forget to share them!Read More
Highlight! People with MS Share How They Are Stronger Than MS and Maintain Independence on World MS Day May 25 Research Hebrew University and Aurum Ventures Team to Create a Diagnostic Blood Test for RRMS JC Virus Carries a Mutation in MS Patients That Amplifies Brain Disease Known as PML MS and Young Adult-onset Hodgkin […]Read More
“Other disorders that cause facial pain should be ruled out before trigeminal neuralgia is diagnosed. Some disorders that cause facial pain include postherpetic neuralgia (nerve pain following an outbreak of shingles), cluster headaches, and temporomandibular joint disorder (TMJ, which causes pain and dysfunction in the jaw joint and muscles that control jaw movement). Most people with TN eventually will undergo a magnetic resonance imaging (MRI) scan to rule out a tumour or multiple sclerosis as the cause of their pain.”Read More
Highlight! Researchers spill the beans on coffee and MS Health Benefits Of Coffee: Multiple Sclerosis Risk Lower In People Who Drink More Java Daily Coffee may help combat Multiple Sclerosis (MS) Research Diabetic Oral Drugs Like Metformin Eased MS Symptoms in People with Both Diseases, Study Reports Signaling Molecule Seen to Induce CNS Remyelination in […]Read More
“So yes, we all have a bit of that sh*t-life-syndrome every so often. Sadly, we cannot unlearn our illness or symptoms like we can unlearn unwanted behaviours. What a drastic symptom like this does teach us, though, is how we can best create a workaround that should lessen its impact on us.”Read More
“I much prefer a writer’s slow process from that one, flickering half a sentence in my head to it eventually making it into my handbag’s notebook or onto the internet. After all, writing in Ireland is a national illness, or a survival instinct of sorts. A lot of ideas come to me by my own form of public crowdsourcing; listening to people and picking up a few words here or there, thinking those words could eventually become a new piece.”Read More
This post features a long, infochart, which you can find when you click →Read More
A war zone. It sounded like a war zone. Sound effects of an AK47 gun amid MRI vibrations and banging noises usually taking place on construction sites. Tinnitus adding an overlay I can miss like never before. Magnetic resonance imaging is a godsend to ill people. In regards to MS, it gives a clear view […]Read More
BrainFacts.org BrainFacts.org – Neuromyths SharpBrains (If you find a website you think might or should be added here, please email me on firstname.lastname@example.org) ©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts […]Read More
Change is good. So they say, anyway. I totally agree, in fact, I welcome change with open arms. Afraid of new challenges? No, not me. Because change is good.Read More
Once again I am here. A small, busy waiting room in hospital. People waiting, wondering, dreading, hoping. How much longer will I need to be here? When will it be the last time I can walk in here with a neurological illness and when will I be able to walk out with that nagging, progressing […]Read More
Therein lies the disconnect: the way others want me to be, and me not being able to keep up. How many of us have pretended to be well enough to walk another 500 meters? How many say they are OK when they feel pain in their limbs, their eyes and in their soul? How many say they will be able to go to work when they were awake half the night because of pain?
Unwillingly we are put in a non-self-imposed isolation; we are put there by our illness, and quite often by the outside world. Our mental functioning is now processed differently because of our illness.