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Ireland, Multiple Sclerosis & Me

Courage is contagious

  • Home
  • About [updated]
  • History of MS
  • A to Z of MS
  • MS Explained
    • Why Multiple Sclerosis Is So Difficult to Diagnose
    • What is MS?
    • The Effects of Multiple Sclerosis on Your Body
    • How MS Affects Brain Cells
    • What causes MS?
    • Types of MS
    • Updated McDonald Criteria (2017)
    • Immune System
      • What is an immune-mediated disease?
      • BiteSized Immunology
    • Central Nervous System
    • CNS (videos)
  • MS Symptoms
    • Early signs of MS
    • 16 Early Symptoms of Multiple Sclerosis
    • MS & Sleep
    • Cognition
    • Multiple Sclerosis and Memory Loss
    • Sensory Symptoms
    • Pain, the basic facts
    • What is pain & how do you rate it?
    • Trigeminal Neuralgia
      • Detailed Trigeminal Neuralgia info
      • Trigeminal Neuralgia Infochart
      • Trigeminal Neuralgia – MedlinePlus
      • Understanding Trigeminal Neuralgia
    • Emotional changes in people with MS
      • MS and Mental Health: Depression, Anxiety and Pseudobulbar Affect (Johns Hopkins)
    • What if it’s not MS
      • Do I Have Multiple Sclerosis or Another Disease?
      • The difference between fibromyalgia and MS
      • The difference between ALS and MS
    • Reading Healthcare: A Medical Terminology Study Guide for Patients, Students and Professionals
  • Managing MS
    • Symptom Management
    • What is an MS relapse?
      • Managing Relapses (US National MS Society)
      • Managing Relapses (MS Trust)
    • Managing MS fatigue
      • The Spoon Theory
    • Pain management
    • Preparing for your neurologist appointment
    • Here’s What to Ask Your Doctor About Multiple Sclerosis
    • A Look at Your Multiple Sclerosis Treatment Plan
    • 40 Self-care strategies
  • MS Treatments
    • Medications List
    • Alternative Treatments
      • Healthy eating
      • Vitamins, Minerals, and Herbs in MS
      • Vitamin D info
      • Vitamins, supplements & MS: research
      • Complementary Health Approaches for MS
      • Complementary & Alternative Medicines
      • Medical Marijuana
      • Evidence-based guideline: Complementary and alternative medicine in MS
  • Research & Clinical Trials
    • Current clinical trials – Ireland
    • Current clinical trials – UK
    • Current clinical trials – globally
    • Understanding clinical trials
    • How Do New Medicines Get Approved?
    • Latest Research
    • RESEARCH NEWS – MS IRELAND
    • Research eZine, by MS Ireland
  • Health Organisations – Ireland
  • To update 2025 – Mental Health Ireland
  • Useful Resources
    • MS Societies around the World
    • Disability websites
    • General websites
    • Medical Websites
    • MS Organisations
    • Neurology (Research)
  • My Journey
    • General
      • Media, stop calling it a cure when it’s not even clinically trialled yet!
      • Oh, media, when will you ever learn? Stop calling it a cure!
    • Newly diagnosed
      • Blurred notes to self
      • The first day
      • It’s OK not to be OK
      • I am not my brain
      • Making sense of MS
      • The road to diagnosis
    • Disease-Modifying Treatments
      • 3443 Needles
      • Starting over
      • Injecting object
      • What a difference a needle makes
    • Living with Trigeminal Neuralgia
      • No-wrinkle multiple sclerosis
      • Where is my left cheek?!
      • The five-second MS rant
      • Not my face!
      • No end to trigeminal neuralgia
      • I’m an ex and I’m lovin’ it!
      • Why I love advocacy!
      • 10 years: a lot to be thankful for
      • How (not to) be sick!
      • A future without chronic illness
      • Medical terminology?
      • MRI scans, hope or defeat
      • The MS blame game
      • MS: a social disconnect
      • Then & now
      • What we refuse to discuss
      • What you might not be aware of
    • Fatigue
      • The truth about Cinderella
      • Sleep: a time-consuming commodity
      • Time to recharge
      • Tiredness ≠ fatigue
    • Emotional Health
      • MS and PTSD: not all in your head
      • Body image and MS: how many selfies do you have?
      • Happiness and MS
      • Things that make you love and hate MS resolutions
      • Bliss, the MS-way
      • Depression?
      • I don’t miss myself
      • I’m only human
      • Mortality
      • Peak moments!
      • Resilience
      • Magnetic voices
    • Hyperacusis | Sound sensitivity | Noise sensitivity
      • Noise sensitivity in MS: Turn off your voice!
      • When life with MS is like The Clash’s ‘Should I stay or should I go’
    • That ignorance!
      • MS Anxiety
      • Defined by myself
      • Dissecting words
      • Ignorance
      • Pull up your big girl panties!
    • Optimism
      • The duality of MS
      • I am not my brain
      • You will survive!
      • What singing taught me about life with MS
      • Branded!
      • Do I have stupid written on my forehead?
      • Fake it ’til you make it!
      • Giving up is not an option
      • How far do baby germs fly?
      • Life begins at the end of your comfort zone
      • Life’s meant to be…
      • The day I stopped being weak
      • Man up!
      • Now what?!
      • Paper dreams
      • Waiting
      • What about it?
      • Why I should be a brainiac, but I’m not
      • You will survive!
    • Relationships/Friendships
      • Body image and MS, fake or not
      • Hell is other people
      • MS and single on Valentine’s Day?
      • MS + single on Valentine’s Day?
      • Kids? Not right now, please…
      • Philosophy of Friendship
      • Single life!
    • MS Relapses / Flare-ups
      • Game, set, relapse!
      • Relapse!
      • Relentless relapse
    • Heat sensitivity / Uhthoff’s Symptoms
      • About Vikings, Vitamin D and multiple sclerosis!
      • Heat sensitivity and MS?
      • Too hot for you? Heat sensitivity explained!
      • The duplicity of MS
      • Every leaf speaks bliss to me
      • Hot town!
      • That thing people call ‘summer’
    • Other symptoms
      • Sensory MS symptoms: The hair that isn’t there
      • You retired at age what?
      • Mental or physical, your choice
      • Silver Linings
      • The social swing of life
      • Jammed filter!
      • Wheelchair?
    • Optic Neuritis
      • Eyes of sorrow
      • Fourteen MS years and counting
    • Ireland
      • Paper dreams
      • The Celtic Tree of Life… sort of!
      • Why Ireland?
      • Ireland, a love story
      • Dublin: a state of mind
      • Back to Ireland
      • Photography
        • Famine
        • Caged
        • An Irish General… and me
        • Irish Selfie
  • Top Posts
  • 🎀 3443 Needles (Winner Ireland Blog Awards 2018) 🎀
  • Blog Awards
  • MS Trust DMT Decisions Aid
  • [NEW] 45 Best Multiple Sclerosis Blogs and Websites in 2025
  • [NEW] Your Everyday Guide To Living Well With Multiple Sclerosis
  • [NEW] 7 Common Complications of MS
  • [NEW] What’s New in MS Research in 2025
  • Privacy Policy
  • Home
  • About [updated]
  • History of MS
  • A to Z of MS
  • MS Explained
    • Why Multiple Sclerosis Is So Difficult to Diagnose
    • What is MS?
    • The Effects of Multiple Sclerosis on Your Body
    • How MS Affects Brain Cells
    • What causes MS?
    • Types of MS
    • Updated McDonald Criteria (2017)
    • Immune System
      • What is an immune-mediated disease?
      • BiteSized Immunology
    • Central Nervous System
    • CNS (videos)
  • MS Symptoms
    • Early signs of MS
    • 16 Early Symptoms of Multiple Sclerosis
    • MS & Sleep
    • Cognition
    • Multiple Sclerosis and Memory Loss
    • Sensory Symptoms
    • Pain, the basic facts
    • What is pain & how do you rate it?
    • Trigeminal Neuralgia
      • Detailed Trigeminal Neuralgia info
      • Trigeminal Neuralgia Infochart
      • Trigeminal Neuralgia – MedlinePlus
      • Understanding Trigeminal Neuralgia
    • Emotional changes in people with MS
      • MS and Mental Health: Depression, Anxiety and Pseudobulbar Affect (Johns Hopkins)
    • What if it’s not MS
      • Do I Have Multiple Sclerosis or Another Disease?
      • The difference between fibromyalgia and MS
      • The difference between ALS and MS
    • Reading Healthcare: A Medical Terminology Study Guide for Patients, Students and Professionals
  • Managing MS
    • Symptom Management
    • What is an MS relapse?
      • Managing Relapses (US National MS Society)
      • Managing Relapses (MS Trust)
    • Managing MS fatigue
      • The Spoon Theory
    • Pain management
    • Preparing for your neurologist appointment
    • Here’s What to Ask Your Doctor About Multiple Sclerosis
    • A Look at Your Multiple Sclerosis Treatment Plan
    • 40 Self-care strategies
  • MS Treatments
    • Medications List
    • Alternative Treatments
      • Healthy eating
      • Vitamins, Minerals, and Herbs in MS
      • Vitamin D info
      • Vitamins, supplements & MS: research
      • Complementary Health Approaches for MS
      • Complementary & Alternative Medicines
      • Medical Marijuana
      • Evidence-based guideline: Complementary and alternative medicine in MS
  • Research & Clinical Trials
    • Current clinical trials – Ireland
    • Current clinical trials – UK
    • Current clinical trials – globally
    • Understanding clinical trials
    • How Do New Medicines Get Approved?
    • Latest Research
    • RESEARCH NEWS – MS IRELAND
    • Research eZine, by MS Ireland
  • Health Organisations – Ireland
  • To update 2025 – Mental Health Ireland
  • Useful Resources
    • MS Societies around the World
    • Disability websites
    • General websites
    • Medical Websites
    • MS Organisations
    • Neurology (Research)
  • My Journey
    • General
      • Media, stop calling it a cure when it’s not even clinically trialled yet!
      • Oh, media, when will you ever learn? Stop calling it a cure!
    • Newly diagnosed
      • Blurred notes to self
      • The first day
      • It’s OK not to be OK
      • I am not my brain
      • Making sense of MS
      • The road to diagnosis
    • Disease-Modifying Treatments
      • 3443 Needles
      • Starting over
      • Injecting object
      • What a difference a needle makes
    • Living with Trigeminal Neuralgia
      • No-wrinkle multiple sclerosis
      • Where is my left cheek?!
      • The five-second MS rant
      • Not my face!
      • No end to trigeminal neuralgia
      • I’m an ex and I’m lovin’ it!
      • Why I love advocacy!
      • 10 years: a lot to be thankful for
      • How (not to) be sick!
      • A future without chronic illness
      • Medical terminology?
      • MRI scans, hope or defeat
      • The MS blame game
      • MS: a social disconnect
      • Then & now
      • What we refuse to discuss
      • What you might not be aware of
    • Fatigue
      • The truth about Cinderella
      • Sleep: a time-consuming commodity
      • Time to recharge
      • Tiredness ≠ fatigue
    • Emotional Health
      • MS and PTSD: not all in your head
      • Body image and MS: how many selfies do you have?
      • Happiness and MS
      • Things that make you love and hate MS resolutions
      • Bliss, the MS-way
      • Depression?
      • I don’t miss myself
      • I’m only human
      • Mortality
      • Peak moments!
      • Resilience
      • Magnetic voices
    • Hyperacusis | Sound sensitivity | Noise sensitivity
      • Noise sensitivity in MS: Turn off your voice!
      • When life with MS is like The Clash’s ‘Should I stay or should I go’
    • That ignorance!
      • MS Anxiety
      • Defined by myself
      • Dissecting words
      • Ignorance
      • Pull up your big girl panties!
    • Optimism
      • The duality of MS
      • I am not my brain
      • You will survive!
      • What singing taught me about life with MS
      • Branded!
      • Do I have stupid written on my forehead?
      • Fake it ’til you make it!
      • Giving up is not an option
      • How far do baby germs fly?
      • Life begins at the end of your comfort zone
      • Life’s meant to be…
      • The day I stopped being weak
      • Man up!
      • Now what?!
      • Paper dreams
      • Waiting
      • What about it?
      • Why I should be a brainiac, but I’m not
      • You will survive!
    • Relationships/Friendships
      • Body image and MS, fake or not
      • Hell is other people
      • MS and single on Valentine’s Day?
      • MS + single on Valentine’s Day?
      • Kids? Not right now, please…
      • Philosophy of Friendship
      • Single life!
    • MS Relapses / Flare-ups
      • Game, set, relapse!
      • Relapse!
      • Relentless relapse
    • Heat sensitivity / Uhthoff’s Symptoms
      • About Vikings, Vitamin D and multiple sclerosis!
      • Heat sensitivity and MS?
      • Too hot for you? Heat sensitivity explained!
      • The duplicity of MS
      • Every leaf speaks bliss to me
      • Hot town!
      • That thing people call ‘summer’
    • Other symptoms
      • Sensory MS symptoms: The hair that isn’t there
      • You retired at age what?
      • Mental or physical, your choice
      • Silver Linings
      • The social swing of life
      • Jammed filter!
      • Wheelchair?
    • Optic Neuritis
      • Eyes of sorrow
      • Fourteen MS years and counting
    • Ireland
      • Paper dreams
      • The Celtic Tree of Life… sort of!
      • Why Ireland?
      • Ireland, a love story
      • Dublin: a state of mind
      • Back to Ireland
      • Photography
        • Famine
        • Caged
        • An Irish General… and me
        • Irish Selfie
  • Top Posts
  • 🎀 3443 Needles (Winner Ireland Blog Awards 2018) 🎀
  • Blog Awards
  • MS Trust DMT Decisions Aid
  • [NEW] 45 Best Multiple Sclerosis Blogs and Websites in 2025
  • [NEW] Your Everyday Guide To Living Well With Multiple Sclerosis
  • [NEW] 7 Common Complications of MS
  • [NEW] What’s New in MS Research in 2025
  • Privacy Policy
Multiple Sclerosis, Recommended, Resources

MS paresthesia: I’m buzzing. Literally.

read more
Multiple Sclerosis, Resources, World MS Day

Everything you need to know about MS and hot weather

read more
MS, Multiple Sclerosis, Recommended, Resources

MS: musings from inside the neurology department waiting room, 21 years later

read more
Multiple Sclerosis, Resources

MS: a life filled with paradoxes

read more
Multiple Sclerosis, Recommended, Resources

MS: Feeling seen doesn’t always mean feeling heard

read more
Multiple Sclerosis, Resources

To my brother, gone 19 years too many

read more
Link 1
A harsh letter to my MS
Link 1
Revisiting 3443 Needles, Best Blog Post Award 2018
Link 1
Body image and MS, fake or not
  • MS,  Multiple Sclerosis,  Practical life hacks and MS

    MS Trust 21 Challenge

    25 April 2014 / No Comments

    "Here’s a breakdown of the challenge (you will be linked to the MS Trust website to enter). Like they say: “Keep the trust posted on the challenges you're taking part in by sharing your stories and photos on Twitter and Facebook using hashtag #MSWeek!”"

    Continue reading
  • MS,  Multiple Sclerosis

    The big, fat, ugly truth

    21 April 2014 / No Comments

    I am under attack. Should have expected so, but in all cases starting with a C, you rather tend to ignore the truth. GP nearly had a fit when overlooking my blood test results. Why? The big… fat… very fat… C. No, not cancer. “Bad” cholesterol, in fact. Low-density lipoprotein (LDL). Gulp. When my doctor told me, he nearly had a fit himself.

    Continue reading
  • MS,  Multiple Sclerosis

    A day in the life of fatigue

    18 April 2014 / No Comments

    Continue reading
  • Advocacy,  MS,  Multiple Sclerosis,  Writing

    Meet your new MS Ireland writer!

    17 April 2014 / No Comments

    "It has been a bit of a hectic, but a great time to write lately. Two bits of fantastic news came my way in regards to my writing, and I’ve been over the moon since."

    Continue reading
  • Barts MS Blog,  Monthly MS News,  MS,  Multiple Sclerosis

    MS News: April 2014

    13 April 2014 / No Comments

    Research results Enhanced uptake of multiple sclerosis-derived myelin by THP-1 macrophages and primary human … 7thSpace Interactive (press release) – The pathological hallmark of multiple sclerosis (MS) is myelin phagocytosis. It remains unclear why microglia and macrophages demyelinate axons in … Textured insoles could be a positive step for people with MS UQ News – University of Queensland research is investigating the effects textured shoe insoles have on walking problems associated with multiple sclerosis. ANP reports positive results from chronic toxicity study of ATL1102 in multiple sclerosis News-Medical.net – Antisense Therapeutics Limited (“ANP” or the “Company”) is pleased to advise that results from a chronic toxicity study in monkeys indicate that …

    Continue reading
  • MS,  Multiple Sclerosis

    9 years on…

    10 April 2014 / No Comments

    Continue reading
  • Barts MS Blog,  Monthly MS News,  MS,  Multiple Sclerosis

    MS News: March 2014

    5 April 2014 / No Comments

    A little bit later than usual, for which I apologise, but here is the good news that graced global media in March 2014.

    Continue reading
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What? Why?

IMSM is an award-winning blog filled with personal experiences and general information about MS to fill the gap left by websites crowded with medical jargon.

Now 22 years in Ireland and 20 years post-diagnosis, my goal is to connect people who like me, found themselves in front of MS’s door, and were dragged in for an extended stay in one of its uncomfortable, dark-lit backrooms. Hopefully, we will connect somehow to share its burden and be an inspiration to each other. After all, IMSM was created to do just that: trying to make sense of MS nonsense.

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis and Me, 2025

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