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Ireland, Multiple Sclerosis & Me

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  • About [updated]
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    • What is pain & how do you rate it?
    • Trigeminal Neuralgia
      • Detailed Trigeminal Neuralgia info
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      • Trigeminal Neuralgia – MedlinePlus
      • Understanding Trigeminal Neuralgia
    • Emotional changes in people with MS
      • MS and Mental Health: Depression, Anxiety and Pseudobulbar Affect (Johns Hopkins)
    • What if it’s not MS
      • Do I Have Multiple Sclerosis or Another Disease?
      • The difference between fibromyalgia and MS
      • The difference between ALS and MS
    • Reading Healthcare: A Medical Terminology Study Guide for Patients, Students and Professionals
  • Managing MS
    • Symptom Management
    • What is an MS relapse?
      • Managing Relapses (US National MS Society)
      • Managing Relapses (MS Trust)
    • Managing MS fatigue
      • The Spoon Theory
    • Pain management
    • Preparing for your neurologist appointment
    • Here’s What to Ask Your Doctor About Multiple Sclerosis
    • A Look at Your Multiple Sclerosis Treatment Plan
    • 40 Self-care strategies
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    • Alternative Treatments
      • Healthy eating
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      • Evidence-based guideline: Complementary and alternative medicine in MS
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      • Media, stop calling it a cure when it’s not even clinically trialled yet!
      • Oh, media, when will you ever learn? Stop calling it a cure!
    • Newly diagnosed
      • Blurred notes to self
      • The first day
      • It’s OK not to be OK
      • I am not my brain
      • Making sense of MS
      • The road to diagnosis
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      • 3443 Needles
      • Starting over
      • Injecting object
      • What a difference a needle makes
    • Living with Trigeminal Neuralgia
      • No-wrinkle multiple sclerosis
      • Where is my left cheek?!
      • The five-second MS rant
      • Not my face!
      • No end to trigeminal neuralgia
      • I’m an ex and I’m lovin’ it!
      • Why I love advocacy!
      • 10 years: a lot to be thankful for
      • How (not to) be sick!
      • A future without chronic illness
      • Medical terminology?
      • MRI scans, hope or defeat
      • The MS blame game
      • MS: a social disconnect
      • Then & now
      • What we refuse to discuss
      • What you might not be aware of
    • Fatigue
      • The truth about Cinderella
      • Sleep: a time-consuming commodity
      • Time to recharge
      • Tiredness ≠ fatigue
    • Emotional Health
      • MS and PTSD: not all in your head
      • Body image and MS: how many selfies do you have?
      • Happiness and MS
      • Things that make you love and hate MS resolutions
      • Bliss, the MS-way
      • Depression?
      • I don’t miss myself
      • I’m only human
      • Mortality
      • Peak moments!
      • Resilience
      • Magnetic voices
    • Hyperacusis | Sound sensitivity | Noise sensitivity
      • Noise sensitivity in MS: Turn off your voice!
      • When life with MS is like The Clash’s ‘Should I stay or should I go’
    • That ignorance!
      • MS Anxiety
      • Defined by myself
      • Dissecting words
      • Ignorance
      • Pull up your big girl panties!
    • Optimism
      • The duality of MS
      • I am not my brain
      • You will survive!
      • What singing taught me about life with MS
      • Branded!
      • Do I have stupid written on my forehead?
      • Fake it ’til you make it!
      • Giving up is not an option
      • How far do baby germs fly?
      • Life begins at the end of your comfort zone
      • Life’s meant to be…
      • The day I stopped being weak
      • Man up!
      • Now what?!
      • Paper dreams
      • Waiting
      • What about it?
      • Why I should be a brainiac, but I’m not
      • You will survive!
    • Relationships/Friendships
      • Body image and MS, fake or not
      • Hell is other people
      • MS and single on Valentine’s Day?
      • MS + single on Valentine’s Day?
      • Kids? Not right now, please…
      • Philosophy of Friendship
      • Single life!
    • MS Relapses / Flare-ups
      • Game, set, relapse!
      • Relapse!
      • Relentless relapse
    • Heat sensitivity / Uhthoff’s Symptoms
      • About Vikings, Vitamin D and multiple sclerosis!
      • Heat sensitivity and MS?
      • Too hot for you? Heat sensitivity explained!
      • The duplicity of MS
      • Every leaf speaks bliss to me
      • Hot town!
      • That thing people call ‘summer’
    • Other symptoms
      • Sensory MS symptoms: The hair that isn’t there
      • You retired at age what?
      • Mental or physical, your choice
      • Silver Linings
      • The social swing of life
      • Jammed filter!
      • Wheelchair?
    • Optic Neuritis
      • Eyes of sorrow
      • Fourteen MS years and counting
    • Ireland
      • Paper dreams
      • The Celtic Tree of Life… sort of!
      • Why Ireland?
      • Ireland, a love story
      • Dublin: a state of mind
      • Back to Ireland
      • Photography
        • Famine
        • Caged
        • An Irish General… and me
        • Irish Selfie
  • Top Posts
  • 🎀 3443 Needles (Winner Ireland Blog Awards 2018) 🎀
  • Blog Awards
  • MS Trust DMT Decisions Aid
  • [NEW] 45 Best Multiple Sclerosis Blogs and Websites in 2025
  • [NEW] Your Everyday Guide To Living Well With Multiple Sclerosis
  • [NEW] 7 Common Complications of MS
  • [NEW] What’s New in MS Research in 2025
  • Privacy Policy
  • Home
  • About [updated]
  • History of MS
  • A to Z of MS
  • MS Explained
    • Why Multiple Sclerosis Is So Difficult to Diagnose
    • What is MS?
    • The Effects of Multiple Sclerosis on Your Body
    • How MS Affects Brain Cells
    • What causes MS?
    • Types of MS
    • Updated McDonald Criteria (2017)
    • Immune System
      • What is an immune-mediated disease?
      • BiteSized Immunology
    • Central Nervous System
    • CNS (videos)
  • MS Symptoms
    • Early signs of MS
    • 16 Early Symptoms of Multiple Sclerosis
    • MS & Sleep
    • Cognition
    • Multiple Sclerosis and Memory Loss
    • Sensory Symptoms
    • Pain, the basic facts
    • What is pain & how do you rate it?
    • Trigeminal Neuralgia
      • Detailed Trigeminal Neuralgia info
      • Trigeminal Neuralgia Infochart
      • Trigeminal Neuralgia – MedlinePlus
      • Understanding Trigeminal Neuralgia
    • Emotional changes in people with MS
      • MS and Mental Health: Depression, Anxiety and Pseudobulbar Affect (Johns Hopkins)
    • What if it’s not MS
      • Do I Have Multiple Sclerosis or Another Disease?
      • The difference between fibromyalgia and MS
      • The difference between ALS and MS
    • Reading Healthcare: A Medical Terminology Study Guide for Patients, Students and Professionals
  • Managing MS
    • Symptom Management
    • What is an MS relapse?
      • Managing Relapses (US National MS Society)
      • Managing Relapses (MS Trust)
    • Managing MS fatigue
      • The Spoon Theory
    • Pain management
    • Preparing for your neurologist appointment
    • Here’s What to Ask Your Doctor About Multiple Sclerosis
    • A Look at Your Multiple Sclerosis Treatment Plan
    • 40 Self-care strategies
  • MS Treatments
    • Medications List
    • Alternative Treatments
      • Healthy eating
      • Vitamins, Minerals, and Herbs in MS
      • Vitamin D info
      • Vitamins, supplements & MS: research
      • Complementary Health Approaches for MS
      • Complementary & Alternative Medicines
      • Medical Marijuana
      • Evidence-based guideline: Complementary and alternative medicine in MS
  • Research & Clinical Trials
    • Current clinical trials – Ireland
    • Current clinical trials – UK
    • Current clinical trials – globally
    • Understanding clinical trials
    • How Do New Medicines Get Approved?
    • Latest Research
    • RESEARCH NEWS – MS IRELAND
    • Research eZine, by MS Ireland
  • Health Organisations – Ireland
  • To update 2025 – Mental Health Ireland
  • Useful Resources
    • MS Societies around the World
    • Disability websites
    • General websites
    • Medical Websites
    • MS Organisations
    • Neurology (Research)
  • My Journey
    • General
      • Media, stop calling it a cure when it’s not even clinically trialled yet!
      • Oh, media, when will you ever learn? Stop calling it a cure!
    • Newly diagnosed
      • Blurred notes to self
      • The first day
      • It’s OK not to be OK
      • I am not my brain
      • Making sense of MS
      • The road to diagnosis
    • Disease-Modifying Treatments
      • 3443 Needles
      • Starting over
      • Injecting object
      • What a difference a needle makes
    • Living with Trigeminal Neuralgia
      • No-wrinkle multiple sclerosis
      • Where is my left cheek?!
      • The five-second MS rant
      • Not my face!
      • No end to trigeminal neuralgia
      • I’m an ex and I’m lovin’ it!
      • Why I love advocacy!
      • 10 years: a lot to be thankful for
      • How (not to) be sick!
      • A future without chronic illness
      • Medical terminology?
      • MRI scans, hope or defeat
      • The MS blame game
      • MS: a social disconnect
      • Then & now
      • What we refuse to discuss
      • What you might not be aware of
    • Fatigue
      • The truth about Cinderella
      • Sleep: a time-consuming commodity
      • Time to recharge
      • Tiredness ≠ fatigue
    • Emotional Health
      • MS and PTSD: not all in your head
      • Body image and MS: how many selfies do you have?
      • Happiness and MS
      • Things that make you love and hate MS resolutions
      • Bliss, the MS-way
      • Depression?
      • I don’t miss myself
      • I’m only human
      • Mortality
      • Peak moments!
      • Resilience
      • Magnetic voices
    • Hyperacusis | Sound sensitivity | Noise sensitivity
      • Noise sensitivity in MS: Turn off your voice!
      • When life with MS is like The Clash’s ‘Should I stay or should I go’
    • That ignorance!
      • MS Anxiety
      • Defined by myself
      • Dissecting words
      • Ignorance
      • Pull up your big girl panties!
    • Optimism
      • The duality of MS
      • I am not my brain
      • You will survive!
      • What singing taught me about life with MS
      • Branded!
      • Do I have stupid written on my forehead?
      • Fake it ’til you make it!
      • Giving up is not an option
      • How far do baby germs fly?
      • Life begins at the end of your comfort zone
      • Life’s meant to be…
      • The day I stopped being weak
      • Man up!
      • Now what?!
      • Paper dreams
      • Waiting
      • What about it?
      • Why I should be a brainiac, but I’m not
      • You will survive!
    • Relationships/Friendships
      • Body image and MS, fake or not
      • Hell is other people
      • MS and single on Valentine’s Day?
      • MS + single on Valentine’s Day?
      • Kids? Not right now, please…
      • Philosophy of Friendship
      • Single life!
    • MS Relapses / Flare-ups
      • Game, set, relapse!
      • Relapse!
      • Relentless relapse
    • Heat sensitivity / Uhthoff’s Symptoms
      • About Vikings, Vitamin D and multiple sclerosis!
      • Heat sensitivity and MS?
      • Too hot for you? Heat sensitivity explained!
      • The duplicity of MS
      • Every leaf speaks bliss to me
      • Hot town!
      • That thing people call ‘summer’
    • Other symptoms
      • Sensory MS symptoms: The hair that isn’t there
      • You retired at age what?
      • Mental or physical, your choice
      • Silver Linings
      • The social swing of life
      • Jammed filter!
      • Wheelchair?
    • Optic Neuritis
      • Eyes of sorrow
      • Fourteen MS years and counting
    • Ireland
      • Paper dreams
      • The Celtic Tree of Life… sort of!
      • Why Ireland?
      • Ireland, a love story
      • Dublin: a state of mind
      • Back to Ireland
      • Photography
        • Famine
        • Caged
        • An Irish General… and me
        • Irish Selfie
  • Top Posts
  • 🎀 3443 Needles (Winner Ireland Blog Awards 2018) 🎀
  • Blog Awards
  • MS Trust DMT Decisions Aid
  • [NEW] 45 Best Multiple Sclerosis Blogs and Websites in 2025
  • [NEW] Your Everyday Guide To Living Well With Multiple Sclerosis
  • [NEW] 7 Common Complications of MS
  • [NEW] What’s New in MS Research in 2025
  • Privacy Policy
Multiple Sclerosis, Recommended, Resources

MS paresthesia: I’m buzzing. Literally.

read more
Multiple Sclerosis, Resources, World MS Day

Everything you need to know about MS and hot weather

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MS, Multiple Sclerosis, Recommended, Resources

MS: musings from inside the neurology department waiting room, 21 years later

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Multiple Sclerosis, Resources

MS: a life filled with paradoxes

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Multiple Sclerosis, Recommended, Resources

MS: Feeling seen doesn’t always mean feeling heard

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Multiple Sclerosis, Resources

To my brother, gone 19 years too many

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Link 1
A harsh letter to my MS
Link 1
Revisiting 3443 Needles, Best Blog Post Award 2018
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Body image and MS, fake or not
  • Mental Health,  MS,  Multiple Sclerosis

    Oh, snap!

    8 August 2016 / 2 Comments

    "Also, because of the long, warm summer days, Uhthoff's Symptoms, also referred to as Phenomenon or heat sensitivity, means that I am rather slow in the upstairs department, which eventually lead to predicament B. My days are unquestionably not dull nor tranquil, so."

    Continue reading
  • Barts MS Blog,  Monthly MS News,  MS,  Multiple Sclerosis

    MS News: July 2016

    1 August 2016 / No Comments

    The latest news on MS research, clinical trials, treatments, mental health, diet, exercise, lifestyle as well as business news and videos.

    Continue reading
  • Mental Health,  MS,  Multiple Sclerosis,  Practical life hacks and MS

    40 Self-care strategies

    24 July 2016 / 4 Comments

    We all get preoccupied with our personal, social and professional life sometimes. In doing so, we often forget that self-care is quite important. After all, ‘mens sana in corpore sano’ or ‘a healthy mind in a healthy body’ is one of the biggest and best gifts you can give yourself. For those less fortunate in the health department – including yours truly – you can adopt a few easy steps to make yourself feel better physically, mentally and emotionally. You can only move forward in life when you take ownership of everything in it, my mantra is ‘Life is 10% of what happens to me and 90% how I react to it.‘ With that in mind, so, practising below hints makes them a lot easier to follow. Morning Wake up…

    Continue reading
  • MS,  Multiple Sclerosis,  Your career and MS

    Mental or physical, your choice

    14 July 2016 / 6 Comments

    "Is life with MS that comfortable, then? God, no. Absolutely not. You just have to learn how to live with it. Somehow I found a way to tap goodness from those negative connotations because I listened to its actual narrative by refusing to make a mountain out of a molehill. So, even when facial pain is also called “the suicide disease”, even when MS fatigue can knock me senseless in less than five minutes, and even when I feel awful inside despite not looking sick, I am just cool with the whole lot because there simply is no other way."

    Continue reading
  • Barts MS Blog,  Monthly MS News,  MS,  Multiple Sclerosis

    MS News: June 2016

    5 July 2016 / 2 Comments

    Check June's main MS news stories and do not forget to share them!

    Continue reading
  • MS,  Multiple Sclerosis

    GUEST POST: Using Social Media to Connect With Other MSers

    19 June 2016 / No Comments

    Guest contributor Debra Robert: "The beauty of social media is that there is no right or wrong way to engage."

    Continue reading
  • Mental Health,  MS,  Multiple Sclerosis,  Your career and MS

    Preparing for your neurological appointment

    4 June 2016 / 1 Comment

    Seeing your neurologist can often make you feel anxious or afraid to speak up. Each appointment should be about exploring options, not about being bulldozed by a standardised litany of things you don’t want. Going in prepared will make you feel more at ease, so why not make a list of vital questions and things you need to discuss? When you organise your thoughts, you feel more in control of the situation and sure of where you want to see your treatment go. After all, you are the one living with your illness. Don’t feel ashamed either in what you want to ask your neurologist, chances are they have heard similar things before, and they will be the least likely people to attack you for asking. Remember, the only silly question is the…

    Continue reading
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What? Why?

IMSM is an award-winning blog filled with personal experiences and general information about MS to fill the gap left by websites crowded with medical jargon.

Now 22 years in Ireland and 20 years post-diagnosis, my goal is to connect people who like me, found themselves in front of MS’s door, and were dragged in for an extended stay in one of its uncomfortable, dark-lit backrooms. Hopefully, we will connect somehow to share its burden and be an inspiration to each other. After all, IMSM was created to do just that: trying to make sense of MS nonsense.

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis and Me, 2025

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