World MS Day 2013: stay positive
World MS Day 2013: be informed
What is MS?
WMSD 2013: cure ignorance
You never know how strong you are…
One of the most emotional journeys you could go on, is meeting yourself along the road of a diagnosis you never wanted to happen. It will make you, shape you and perhaps take you somewhere you don’t want to go, but for now, you have to. You lose a parent, a brother or sister, or someone else you dearly loved, and yet time goes on. Time has to go on. For your family, for yourself. Years later you realize you went through that loss maybe a bit better than you ever thought you would. Because being strong was the only option you had. Being diagnosed with an illness that can’t be cured is a little bit similar. Or is it? The day I received my multiple sclerosis diagnosis is a…
UNCRPD – The Right on Participation in Political and Public Life
It has been a great, uplifting two weeks. Busy, yes, but it was also about self-analysis and giving back. If I remember well – as you know my memories have a short lifespan – it was all about life with MS. I finally received meds for trigeminal neuralgia, aka the ‘suicide disease’ last week. As trigeminal goes, it is one of the most painful conditions according to medical staff. Over the past three to four months, many a thought went into on finding ways of eradicating the pain. It went as far as referring to it as ‘trigeminal blah blah blah’ because I started hating the word and all it stood for. Not often do I lose hope when I am in a lot of pain, and with a pain…
World MS Day 2013: raise awareness
UNCRPD – Getting Ready to Ratify (2)
Like mentioned last Friday, I went to a conference on the hopefully soon-to-be ratified UN Convention on the Rights of Persons with Disabilities (UNCRPD) and this Friday, I will attend a second conference about this. Before I received both invitations, I was unaware of the CRPD. My first thought was “Oh I thought there were already rights in place for people with disabilities?” Not so, and I have tried to learn about conventions and optional protocols since then. It’s testing though, remembering article 1 by the time I’ve arrived at article 2 is a bit of a challenge, but challenges don’t scare me. On the contrary.