EMSP Spring Conference 2014, Dublin
"For those reasons, the European MS Platform will host its Spring Conference in Ireland on the 8th and the 9th of May in the Gibson Hotel, Dublin. The theme of this year’s conference is “Care where it counts - in the journey with MS.”"
Meet your new MS Ireland writer!
"It has been a bit of a hectic, but a great time to write lately. Two bits of fantastic news came my way in regards to my writing, and I’ve been over the moon since."
The sorry state of neurology in Ireland: one year on
"Governments past kept on living with their own kind of neurological illness, i.e. selective memory loss when these services so clearly demanded upgrades."
But nudging isn’t enough
“I spend half my time comforting the afflicted, and the other half afflicting the comfortable.” (Wess Stafford) “If you’re afraid to defend your convictions because you might get your ass kicked for it, you’re not really fit to advocate for them.” (James Carlos Blake) “But nudging isn’t enough.” (Jacqueline Novogratz) “Never be afraid to raise your voice for honesty and truth and compassion against injustice and lying and greed. If people all over the world…would do this, it would change the earth.” (William Faulkner)
World MS Day 2014
For more on World MS Day, please visit http://www.worldmsday.org/ This year’s tag-line is “One day…” where people with MS can add access-related mottos, questions and ideas to. Access is still a very important issue that needs more research, adaptation, laws, understanding, support and elimination of barriers before people with multiple sclerosis can lead a totally free, happy and healthy life. If you’re in Ireland, this is the place to be for more on life with MS: http://www.ms-society.ie/ ©Willeke Van Eeckhoutte and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, MS and Me…
MS Ireland National Meeting Day 2013
Last September, I was invited by the Irish MS Society to take part in a panel discussion at their National Day in Galway. I happily accepted because we all know that I never say no to having a good chat. The topic of the National Day was ‘being active and interactive’, and the panel discussion covered employment, exercise, being online and volunteering. Trevis Gleason, well-known in the MS stratosphere and a new addition to the Irish population, interviewed four people with MS: Grace, Anne-Marie, Mark and myself. These are the videos covering above topics. We were all a bit nervous (no, really?! :)) because of being filmed, but we all did very well.
The right to die (updated)
"In the end, the truly sad thing is courts denying people the right to live their own life and deal with death when someone is so obviously tormented. Sanctity of life is a personal matter, what you or I see in this is not up to a court to decide. Not now, not ever."