• MS,  Multiple Sclerosis,  Your career and MS

    Letting go

    Life seems like a joke, out to get you when you least expect it. People disappear from your life, but it’s not until after they’re gone that you realise how much you liked being around them. Or, you understand what being truly happy means because you’ve known absolute sadness. Or you start appreciating silence because you know how loud, annoying and horrible noise can be. Life seems like a joke so; it makes you learn lessons by applying the opposite of what you want. Life is a joke in an ironic way. Murphy’s Law had it in for me years ago. Anything that could go wrong went totally wrong. In the space of 3.5 years I lost part of myself (thank you MS!), and my only sibling, stepdad and four other…

  • MS,  Multiple Sclerosis,  Your career and MS

    Life begins at the end of your comfort zone

    Sometimes I just don’t feel like talking about what goes on mentally or physically. Not being able to sleep properly doesn’t do much good either, so writing about everything that has been ruling my day, was rather hard to do. Having MS is no mean feat… If your MS is anything like mine, then I’m quite sure that you know what I’m talking about. Or maybe not, because people with MS can differ from person to person as no two people are alike symptom-wise. A lot of people are in the relapsing-remitting stage of MS which means that you can have a flare-up (also called relapse or exacerbation) and then you’re mostly symptom-free for a while until another flare-up happens. Seeing as MS is a chronic and degenerative illness, you…

  • Finances and MS,  MS,  Multiple Sclerosis,  Your career and MS

    MS fatigue… the invisible monster

    MS fatigue… The most common, yet most difficult to detect a symptom in multiple sclerosis. Aside from feeling exhausted, having to explain people over and over how different it is to normal tiredness, you often get a stigma assigned of “yeah, yeah, you’re just being lazy” or “sure, now keep walking, it’s probably not that bad.” Not everyone will express their opinion out loud, but people will think about why you’re “just not making a bit more of an effort”. MS fatigue is more or less an invisible symptom and it’s hard to explain exactly what it feels like. Some people will stop talking, walking or you will notice changes in their behaviour. Unlike normal tiredness fit people feel after exercising or working 8h a day, MS fatigue is an…

  • Happy Thoughts,  MS,  Multiple Sclerosis

    I’m a rock chick babe and you better know it!

    Oops! This page has moved to this page  Why not read one of these posts when you’re finished? A powerful letter to my MS MS anxiety Do I have stupid written on my forehead? I’m an ex and I’m loving it! You will survive! Responsibility hurts Ignorance Let’s be frank Fake it ’til you make it Use it or lose it! Are you getting enough? Hope cures old wounds The five-second MS rant Books, great medicine! MS, a lesson in minimalism Death, a fearful thing Balancing life and a chronic illness Updated: June 24th, 2018 © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2018. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may…

  • Happy Thoughts,  MS,  Multiple Sclerosis

    I’m a rock chick babe and you better know it!

    I am a rock chick babe and you better know it. With this statement I came home from my weekly shopping, having browsed through the sales in an already low-cost shop. Makes you feel good knowing you didn’t break the bank doing so. Right now, though, that is not what is on my mind. I also came home with a whole bag full of medication to help me out over the next 4 weeks because my body always has its own mind and it needs to be fed its chemicals 4 times a day. Not so much rock chick now, huh? Pink sings in “So What?” that she’s just lost her husband and that she will not pay his rent. I can live with that, I am single so I…