Pride
Take care of your body. It’s the only place you have to live. (Jim Rohn) Being unwell? For those who only have an odd cold or flu, they believe they cannot possibly feel any worse. For those who battle cancer, ‘being unwell’ becomes a triumph over adversity if their treatment is successful. I often find myself floating in between the mere feeling of the flu or the worst pain possible (trigeminal neuralgia, remember?). On days like that, my illness feels like my body betrays me, day in, day out. Unlike people who have cancer and have the possibility of having their illness ‘cured,’ the course of my multiple sclerosis can only be ‘modified.’ Therein lies the betrayal. Modified becomes a permanent word in your vocabulary. Modified. Not cured, only modified.
Silver Linings
Although I wrote the following post and updated it a good while ago, the subject sometimes finds its way back into my mind and reveals itself as something “ugly”. After all, what can be uglier than death, than feeling yourself slip into darkness? If that was not ugly enough, thoughts about the actions of certain people would make it feel even worse, as if you were just imagining things and what was happening was ‘not that bad’. Having seen what ‘in extremis’ is like, what dwindling closer and closer to my six feet under feels like… it is something that made me realise what life is really all about. So here we go… mor(t)ality…
World MS Day 2013
World MS Day 2013 today. While my diagnosis gave me a lot to think about, it gave back so many things to cherish and love: friends that care, family that supports and a medical team that is ready to tackle my every need. While there might not be a cure yet, I feel blessed to have received a second chance on life to do right by others, to lobby and to open the eyes of many. Thank you everyone for walking along my path of MS. You are the best!
World MS Day 2013: stay positive
World MS Day 2013: be informed
What is MS?
WMSD 2013: cure ignorance
World MS Day 2013: raise awareness