• MS,  Multiple Sclerosis

    Silver Linings

    Although I wrote the following post and updated it a good while ago, the subject sometimes finds its way back into my mind and reveals itself as something “ugly”. After all, what can be uglier than death, than feeling yourself slip into darkness? If that was not ugly enough, thoughts about the actions of certain people would make it feel even worse, as if you were just imagining things and what was happening was ‘not that bad’. Having seen what ‘in extremis’ is like, what dwindling closer and closer to my six feet under feels like… it is something that made me realise what life is really all about. So here we go… mor(t)ality…

  • Health,  MS,  Multiple Sclerosis,  Trigeminal Neuralgia

    UNCRPD – The Right on Participation in Political and Public Life

    It has been a great, uplifting two weeks. Busy, yes, but it was also about self-analysis and giving back. If I remember well – as you know my memories have a short lifespan – it was all about life with MS. I finally received meds for trigeminal neuralgia, aka the ‘suicide disease’ last week. As trigeminal goes, it is one of the most painful conditions according to medical staff. Over the past three to four months, many a thought went into on finding ways of eradicating the pain. It went as far as referring to it as ‘trigeminal blah blah blah’ because I started hating the word and all it stood for. Not often do I lose hope when I am in a lot of pain, and with a pain…

  • Dangling clock
    Mental Health,  MS,  Multiple Sclerosis

    Mortality

    The superbug that had been staring into my eyes for months seemed long gone. In its wake, it left me wondering. I went through an abyss, one that could resemble Dante's nine circles of hell. That bottom of that abyss had been the morning before the rush into surgery.