The duality of MS
In ever memory of physical betrayal and every second of dislike of my illness, I am still intrigued by its complexities and continue to care for all its nuts and bolts.
Time heals, perhaps even MS
As you move on in life, you will find that perhaps your diagnosis was something that needed to happen to see what is really important in life. It is not an expensive new car, clothes, jewelry. It’s health and acceptance, though flawed the best of times.
In search of my MS Zen
Despite having my inner dialogue running into philosophical mayhem, parameters on what I perceived to be acceptable have been reset, and my inner dialogue needs a fix as an intuitively sharp anguish took over my mindset last week.
Pull up your big girl panties!
Let me count… Roughly speaking, I was diagnosed with MS about 5000 days ago. That’s one fair bit of experience under my hood, right? But… When talking to people, new or otherwise, it can be difficult telling them you’re living with an incurable neurodegenerative illness. Sometimes it feels like being in an uninterrupted car crash, minus the brakes, seatbelt or the steering wheel, especially when they add their own preconceived ideas about MS based on hearsay or pop-culture folly. Even if you’ve been living with MS for a decade or for just one day, you’re occasionally hitting walls of guessing, worries, disbelief and/or anger at each turn. You’re in denial. (they’re probably as well at first) You’re angry. (there’s a fair chance they are trying to remain cool under pressure when you…
I am not my brain
"What's wrong with my brain?" doesn't automatically mean, "Is my mind, my soul therefore broken as well?"
Clinical trials explained
In the UK, it takes over 12 years to develop a new medicine to the standards of quality, efficacy and safety laid down by legislation. It typically costs £1.15 billion to do all the research and development necessary before a new medicine can be licensed for use. The majority of medicines under development never make it to the market; following thorough studies, they may be found to have unacceptable side effects, or they don’t work any better than existing treatments. Timeline of medicine development For every marketed medicine that makes enough money to pay for its development, about 25,000 chemical compounds were tested, on average 25 of these will have gone into clinical trials and five received approval for marketing. Our timeline of medicine development shows the stages a…
What MS looks like in your brain