Hope cures old wounds

10505565_271992656337777_3335423019850516985_n‘Hypochondria? It’s the only disease I haven’t met yet.’ One of the easier jokes I can actually remember as I simply don’t do can’t remember long ones.

MS? Awkward, puzzling, easier said than done, and the type of illness that carries this tagline, “The illness is mine, but the tragedy theirs,” when asked how your family feels about your condition. Buzzwords that don’t exactly calm down an overactive mind.

Any illness is unwelcome, that much we can agree on. MS can strike in so many different ways that your life often resembles a war zone. When I entered the MS academy, I read the small print and knew it wouldn’t be a 365-day holiday. But, if one good thing has come from being diagnosed ten years ago, it’s the perception that no matter what happens, life goes on.

And boy does it go on.

With 51 symptoms associated with MS, it doesn’t seem like it is nitpicking when one or two happen at any given time or for any given reason. In the past, superbugs and near-blood-clots found their way into my system. How? My army of doctors can tell you all about it. Outcome? It takes a strong mind not to give in to doomsday scenarios every day.

As sobering as this post sounds, I tolerate MS. There’s no resentment or blame, no more heartache, guilt or doubt. I find solace in seeing science produce more and better research results and medication. Clinical trials are moving forward at a pace that will eventually lead to an easier life with an illness that is as fickle as MS.

PwMS (People with MS) often talk about a cure each time new research results are published. Timeframes can be testing and lengthy as it can take up to a decade between research and clinical news becoming public knowledge, and the eventual market release of new products. Even then your local government might step in and hold you or the medication for ransom.

I admit that I try hard not to be overly excited when I see headlines linking the word ‘cure’ to ‘MS’. Being of the optimistic kind, though, I find it hard resetting my positive thinking back to ‘Relax, it’ll take another decade’ mode.

For my family and friends, I want to see a cure for MS within my lifetime, to ease their minds more than mine. There are currently 2.5 million people living with MS worldwide. That’s a hell of a big band of brothers and sisters, united because of a dodgy central nervous system.

For me? It would mean an end to excruciating trigeminal neuralgia and disabling fatigue. No more being unable to write because of painful eyes. No more listening to the TV instead of watching it. Cancelling event after event.

Like every other person living with a serious, progressive illness that affects every cell of your body, I want to see it removed. Until then, I wait. I wait patiently or impatiently. I hope. We hope that day will come soon. And when it happens, I want to be there.


©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorised use and duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

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Quirky, tenacious and neurologically compromised female expat living in Ireland since 2002 ◾ IRELAND BLOG AWARDS WINNER - BEST BLOG POST 2018 with '3443 Needles' ◾ Ireland Blog Awards Finalist 2014, 2015, 2017 ◾ MyTherapyApp Best MS Blog for Simplicity 2018 ◾ Everyday Health Top 10 MS Blog of 2018 ◾ Feedspot Top 50 MS Blog 2017, 2018 ◾ Contributor to the Teva MS blog Life Effects ◾ Contributor to the Novartis MS blog Living Like You ◾ Contributor to MS Ireland’s blog MS & Me ◾ Contributor to The Mighty ◾ Guest contributor to MyTherapyApp.com ◾ WEGO Health Patient Leader Award Nominee 2018

12 thoughts on “Hope cures old wounds

  1. I understand the waiting for the cure part. Although I don’t have MS, I have hypothyroidism. They give me a pill that does nothing more than make my levels look normal. I still struggle with all the symptoms. So I have become a researcher. I am learning that there is no single answer for everyone because we are all made up of such a unique internal environment that what works for one doesn’t necessarily work for all. I have become my own guinea pig. Here’s to all of us searching and waiting for a cure. Let us find beauty where it presents itself and immerse ourselves in peace knowing that this life is not the end.

  2. you are prolific, an educator, wonderful at sharing and I am sure enrich the lives of many. I believe in miracles. you are one. have you tried any Quantum Touch or Reiki ?

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