Tag: United Nations

UNCRPD, Ireland’s ten-year moral outrage

Having a neurodegenerative illness that cannot be cured has given me the best gift I could ever ask for, strength and meeting the most inspirational and brightest people with disabilities in Ireland and abroad. Yes, they might “be different” in the eyes of many, but they showed me that not everything in life has a price or a tag. They taught me that disability is about misinterpreted ability because they help other people with or without disabilities within their communities in a time when their government shows signs of deliberate discrimination.

UNCRPD in Ireland – begging for change

Over the years, many extraordinary, inspiring people with disabilities have shown how they have rocked the world in their unique way. What the likes of Trump might regard as incompetence, I have seen extremely able, courageous people who have raised the bar not only for themselves but for others as well. They are living proof that having a disability is not the end of the road. There is, in fact, a whole world ahead of you. It might be good to remember these strong words from Michelle Obama, “When they go low, we go high.”

Disability is never cured with one pill alone

So it seems I’m on the warpath. It also appears that if you want to change things, you have to work very hard to get it done. And hope your adversaries are willing to at least listen for one second to what you have to say. Is it worth it? Not if your voice is cut off before the first vowel leaves your lips. … Read More Disability is never cured with one pill alone

UNCRPD – The Right on Participation in Political and Public Life

It has been a great, uplifting two weeks. Busy, yes, but it was also about self-analysis and giving back. If I remember well – as you know my memories have a short lifespan – it was all about life with MS. I finally received meds for trigeminal neuralgia, aka the ‘suicide disease’ last week. As trigeminal goes, it is one of the most painful … Read More UNCRPD – The Right on Participation in Political and Public Life

UNCRPD – Getting Ready to Ratify (2)

Like mentioned last Friday, I went to a conference on the hopefully soon-to-be ratified UN Convention on the Rights of Persons with Disabilities (UNCRPD) and this Friday, I will attend a second conference about this. Before I received both invitations, I was unaware of the CRPD. My first thought was “Oh I thought there were already rights in place for people with disabilities?” Not … Read More UNCRPD – Getting Ready to Ratify (2)

UNCRPD – Getting Ready to Ratify (1)

“What I’d like to try if I were guaranteed not to fail is to implement the UN Convention on the Rights for People with Disabilities. Too many disabled people all over the world are hurting because of existing inequality, dogma and exclusion. In Ireland for example, people are being denied inclusion and that needs to end now. Getting the Convention ratified so is of major importance, even if/when governments are not interested in doing so.”

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