UNCRPD in Ireland – begging for change

Bad TrumpThe last few months, I’ve read and watched more political news than I could stomach. As a result, shortcut rambling, and buzzwords on Twitter like ‘“tremendous,” “ban,” “wall” and “crooked” now linger in my own vocabulary when I sit down to write. Trying to wipe self-centered #TrumpSpeak from my mind seems futile, though, as each day brings more White House drama.

In contrast, Michelle Obama’s selfless message has always been, “Say something true,” rather than “What will make me sound smart, or witty, or powerful?” or “What does the audience want to hear?” Continue reading “UNCRPD in Ireland – begging for change”

Disability is never cured with one pill alone

So it seems I’m on the warpath. It also seems that if you want to change things, you have to work your damndest to get it done. And hope your adversaries are willing to at least listen for one second to what you have to say.

Is it worth it? Not if your voice is cut off before the first vowel leaves your lips. It is worth it however, if or when your input is evaluated and rationalized as such that your opponent understands quite clearly what you mean.

It’s true that we live in a society where politicians say all and citizens very little. The why and the wherefore of their actions often need to be discussed repeatedly on TV, in newspapers and in the salons of hairdressers, tea parties and our own living rooms.

As an avid reader of online newspapers, I sometimes find myself ‘trying to stay in the game’ as it were. That’s when I realise that politics is a very large game of semantics. I try to learn from what I read and try to do my best to remember everything, something that’s not always easy to do. So I read more about it, and the following day more again. Continue reading “Disability is never cured with one pill alone”

UNCRPD – The Right on Participation in Political and Public Life

enablepageIt has been a great, uplifting two weeks. Busy, yes, but it was also about self-analysis and giving back.

If I remember well – as you know my memories have a short lifespan – it was all about life with MS. I finally received meds for trigeminal neuralgia, aka the ‘suicide disease’ last week. As trigeminal goes, it is one of the most painful conditions according to medical staff. Over the past three to four months, many a thought went into on finding ways of eradicating the pain. It went as far as referring to it as ‘trigeminal blah blah blah’ because I started hating the word and all it stood for.

Not often do I lose hope when I am in a lot of pain, and with a pain barrier that is finding itself higher and higher, I thought I had felt it all. Optic neuritis was the sole contender on my list of ‘the worst pains you can ever feel,’ until trigeminal hit me again after an absence of about a year. Nevertheless, I am on the way to being released of the pain, and I locked abusive terms towards it in my hidden Pandora’s Box inside my mind and I am once again finding hope and strength in different places. Continue reading “UNCRPD – The Right on Participation in Political and Public Life”

UNCRPD – Getting Ready to Ratify (2)

As mentioned last Friday, I went to a conference on the hopefully soon-to-be ratified UN Convention on the Rights of Persons with Disabilities (UNCRPD) and this Friday, I will attend a second conference about those very rights.

Before I received both invitations, I was unaware of the CRPD. My first thought was “Oh, I thought there were already human rights in place in Europe for people with disabilities?” There are, but not in Ireland. Since then, I have tried to learn about conventions and optional protocols. It’s testing when your brain is not only filled with MS scars, but also with cognitive issues. Trying to remember article 1 by the time I’ve arrived at article 2 is a challenge, but challenges don’t scare me. They spur me on. Continue reading “UNCRPD – Getting Ready to Ratify (2)”

UNCRPD – Getting Ready to Ratify (1)

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Today I joined a conference on the UN Convention on the Rights for People with Disabilities (UNCRPD) organised by the Disability Federation of Ireland. The CRPD is an international human rights treaty adopted by the United Nations General Assembly on 13th December 2006 and it consists of a body of international experts that monitors implementation of the Convention by the States Parties. Ireland, like the Netherlands and many other countries signed the convention, but has not ratified it yet.

So why the need to have it ratified? “The Convention is necessary in order to have a clear reaffirmation that the rights of persons with disabilities are human rights and to strengthen respect for these rights.  Although existing human rights conventions offer considerable potential to promote and protect the rights of persons with disabilities, it became clear that this potential was not being tapped.”

“Indeed, persons with disabilities continued being denied their human rights and were kept on the margins of society in all parts of the world.   This continued discrimination against persons with disabilities highlighted the need to adopt a legally binding instrument which set out the legal obligations on States to promote and protect the rights of persons with disabilities” Continue reading “UNCRPD – Getting Ready to Ratify (1)”