Ten happy MS years
A milestone like no other. A curious, strange one indeed. Ten years of living with MS. Ten. In fact, ten years and one week. Reality suddenly became a very different kind of living. As strange as it sounds, it became a more fulfilled life, a happier one also.
MS News: September 2014
It has been a big and very busy September for researchers, clinical trials and pharmaceutical companies. Early this month, the Joint ACTRIMS/ECTRIMS Meeting took place in Boston. For more, please check the extensive website of the conference.
MS in numbers
"Instead of going into the possibility of ending their life in a wheelchair, I refer to the opposite side of the scale. When they say “But 25% of people with MS will end up in a wheelchair!” I say “Perhaps, but that means that 75% of people with MS will not end up in one at all!”
Tiredness ≠ fatigue
"Yes, I do know how to read calendars and clocks. I even know how to reset the microwave clock when Ireland changes to a new daylight saving time. Please don’t compare your healthy tiredness to unhealthy fatigue, it’s like comparing microwaves to planet Mars."
MS News: August 2014
August 2014 has been a great month for people with neurological illnesses, as they finally saw their type of illness broadcast, and indeed, doused by ALS ice bucket challenges. To quickly place ALS amongst other neurological illnesses, perhaps the most famous person with ALS is Stephen Hawking, a personal hero of mine since my teenage years. ALS, also called MND (Motor Neurone Disease and Lou Gehrig’s Disease), is similar to multiple sclerosis and has several causes. A lot of money has gone to charitable organisations supporting ALS as well as other neurological illnesses.
That twitching feeling
"Suffice to say that the type that I have, is stimulus-sensitive and is triggered by a variety of external events, including sound, touch, movement, and light. Just like MS’s unpredictability in general, myoclonus can vary in intensity as well as in frequency, and it cannot be controlled by the one experiencing it."
News: July 2014
A lot of news on the research front in July, which can only be good. It’s a joy, relief as well as hope that one of those research projects or trials might lead to longer periods of remission, and perhaps a return to lesser disability for those with primary and secondary forms of multiple sclerosis. So let’s keep fingers, toes, eye lashes and anything else crossed that can be crossed. A lot of people with severe MS deserve at least that. Remember, 2.3 million people with MS globally is staggering. It doesn’t have to be that way, though. Research results Human Stem Cells Effectively Treat Multiple Sclerosis in Mice Models HCPLive – Embryonic stem cells are a potentially viable treatment option for multiple sclerosis (MS), according to research published online…