Tag Archives: MS Advocacy

[Throwback Thursday] Balancing life and a chronic illness

Oh, you can bet I am willing, I am usually more than willing. When physical restraints curb your potential, you realise that you want so more from your own life, and out of your own reality. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential.

It simply reminds you that being chronically ill sucks.

It’s energy being depleted in all the wrong places. There is no uptake to being ill. There is no room for maneuvering when you’re faced with an illness that will -quite literally- be there until you draw your last breath. Do take it from someone who’s already stared death in the face because of it; it is so not all it’s cracked up to be, honey.

To read the whole post, please go to: Balancing life and a chronic illness

©WVE and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Hell is other people

da11fbf1c3e131f6b8f0649409bf6001To write is to have a third eye on the world. You watch the world spin day after day, and in your mind, you write social commentary to give it a place in your life. Quite often, though, after reading your perceptions a few weeks later, you realise that what you witnessed has completely lost its meaning.

Like this, I have seen the best and the worst of what mankind had to offer the past six months.

There are people in today’s society who have the purest and most thoughtful minds you can wish for. They add serenity and integrity to your life, and they always bring out the best in you.

On the other hand, there are toxic people who have never learned what altruism and dignity is, and who lack insight into what makes people – including themselves – tick. They go on the attack without working out a game plan first and have a habit of calling you “oversensitive” or “you are just misinterpreting me” when you try to verbally counter their attack. Continue reading

Being real!

beingrealImagine, you’re stuck with me in an utterly crazy, hilarious episode of The Big Bang Theory. Let your imagination run riot, especially since this post has some gender reversal role playing added to it.

There is the ditzy Penny-type of person who thinks along the lines of “Not seeing = questioning = perhaps, possibly, maybe believing”. She thinks it’s hard to value the worth of something when it’s not visible, but given time to learn, she might just try and see things your way.

And then there is Leonard, who knows that he’s not on the same score card as some of his contemporaries. He knows that there is truth in the world, and more importantly, inside him. He says, “Stop questioning me. It exists, I have tangible proof, and I will demonstrate it to you until you let go.”

Continue reading

Man up!

screenshot-www-canva-com-2017-01-15-20-38-57During another stimulating chat with one of my ex-college friends, we found out that both our subject of non-admiration is Michael O’Reilly, one of Ireland’s Olympics boxing competitors who was sent home following a failed doping test during the first week of the Games. He knowingly travelled to Rio and although exempt from fighting for a title already, he kept silent for a week. Eventually, he admitted that he “unintentionally took a supplement that may have contained a prohibited substance given to him by someone unrelated to his team or association.”

Of course, by adding that he was “given the substance by someone else,” MOR is not taking full responsibility for the issue. It would be my understanding, though, that if you want to be an Olympic athlete, you don’t jeopardise your place by “unintentionally” taking things but also, that you need to be aware of everything that goes into your system. Passing on the blame in doping cases often smells like self-pity cloaked in a sense of entitlement and egotism. Continue reading

A powerful letter to my MS

Multiple Sclerosis.

You’re here.

Not residing anywhere else but here, inside me.

Nine years and counting. Probably a lot longer if you really want to play dirty.

Why did you choose me when there were so many other people you could have picked? You were probably out for vengeance for working too hard and resting too little. You probably thought it would be fun seeing me cry at the bottom of the staircase when I was too tired to go upstairs. Did you now, did you truly think it was slapstick-funny?

Continue reading

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