MS News: April 2017

MS News: April 2017

Highlight!

  1. Canadian Study of MS-Prone Family Proves that in Rare Cases, Multiple Sclerosis is Inherited
  2. Large Family Study Strengthens Case for Inherited Multiple Sclerosis
  3. New Survey Finds Multiple Sclerosis Patients Struggle with Misdiagnosis and Invisible Symptoms

Continue reading “MS News: April 2017”

MS News: March 2017

MS News: March 2017

Please allow me some nepotism and introduce you to the honourable American/Irish author and my friend Trevis Gleason! He penned a fantastic, witty, humorous and moving memoir about a very unexpected MS diagnosis, ending an old and starting a new career and fulfilling his dream of living in Ireland. You can buy his book here:

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017

  1. Society Releases Statement on American Health Care Act
  2. National MS Society Urges Lawmakers to Oppose American Health Care Act
  3. Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part D: Addressing
  4. Researchers find patients’ annual financial burden under Medicare Part D is ‘too much too soon’

New book by the honourable American/Irish author and friend Trevis Gleason!

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight!

  1. Blood Diagnostic Test for Multiple Sclerosis to be Released in May 2017

Continue reading “MS News: March 2017”

UNCRPD, Ireland’s ten-year moral outrage

UNCRPD, Ireland’s ten-year moral outrage

Ad nauseam.

Ah yes, you know the term.

In proper Wikipedia language, it reads “An argument or other discussion that has continued ‘to [the point of] nausea.” In Irish slang, “We are bloody well tired of talking or hearing about it.”

And that, dear reader, we are. Severely sick and tired of hearing that the Irish government will ratify the UNCRPD by a specified date, only to find out that they very silently forgot to live by that promise. Needless to say, having the gift of the gab in Dáil Éireann is an advantage, yet those we elected to represent our very needs refuse to use that gift when it matters most. Continue reading “UNCRPD, Ireland’s ten-year moral outrage”

200 days

200 days

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200 days.

Being a perfectionist, of course, it had to be precisely 200 days.

Six months and nineteen days between my first multiple sclerosis symptoms and its very diagnosis.

Little did I know that it would eventually transform my life.

It was September 2004, and I had just dropped off my mother at Dublin Airport for her return to Belgium. On the way home, a strange sensation took hold of the left side of my face, as if it had been injected with thick rubber. Thinking nothing of it, I went back to bed to catch up on lost ZZZs.

I slept for hours.

And hours. Continue reading “200 days”