• MS,  Multiple Sclerosis,  Trigeminal Neuralgia

    MRI scans, hope or defeat

    A war zone. It seemed like a war zone. Sound effects of an AK47 gun amid MRI vibrations and banging noises usually taking place on construction sites. Tinnitus adding an overlay I can miss like never before. Magnetic resonance imaging is a godsend to ill people. In regards to MS, it gives a clear view of what is physically going wrong inside the brain, spinal cord, and optic nerves. Add some contrast fluid, and you light up like a Christmas tree, just like mine did this morning. Or so I was told. Sudden, loud sounds twitch my head involuntarily. The upstairs part of my body locked in a mask, I now realise how Leo DiCaprio felt when he played The Man in the Iron Mask.

  • MS,  Multiple Sclerosis,  Trigeminal Neuralgia

    MS: a social disconnect

    Therein lies the disconnect: the way others want me to be, and me not being able to keep up. How many of us have pretended to be well enough to walk another 500 meters? How many say they are OK when they feel pain in their limbs, their eyes and in their soul? How many say they will be able to go to work when they were awake half the night because of pain? Unwillingly we are put in a non-self-imposed isolation; we are put there by our illness, and quite often by the outside world. Our mental functioning is now processed differently because of our illness.