3443 Needles

This is my favourite pose. Stretched out, in an apparent hug with what could be the floor or a bed. But, do not be confused, for I am not that hung up about yoga. I wasn’t on that day, anyway. No, this rather resembles my all-time, never-changing, loudly-snoring daytime nap, and I just happen to find […]

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You will survive!

To this day, 13 years post-diagnosis, I am still prone to having conscious/unconscious battles. I am past the “woe is me” period that tried to knock me sideways at first, but I still have pacing issues that lay bare any ineffectiveness I attribute to myself. We all want the opportunity to stay active human beings. Not wanting to be is foreign to my character and it quite possibly will be for as long as I live. Still studying is just one part of that action plan.

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The story in all of us

MS is a mere aspect, label or classification. My story is therefore not one of heroism or tragedy, satire or drama, cheap thrills or grandeur. Showing up for myself in my own life means taking responsibility for the good and the bad while also trying to achieve goals I set myself for 2018.

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Jammed filter!

Either ‘the birds were lying flow’, or ‘foreign pilitocs’ greatly interested me. Some, in fact, wondered if all of planet Mars just invaded my bloodstream. Involuntary spoonerisms like these have caused laughter and memories that needless to say, others have a far better recollection of that I have.

Me? I thought my newly acquired talent for involuntary creating weird words out of ridiculously dull ones was hilarious. I had it down to a tee.

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0% responsibility – 100% accountability

Today, I joke about not being perfect or about my mind behaving like a repetitive software update that refuses to stick after a few busy days. I may add that my bones rattle and that I have a Club Med-type relationship with three different hospitals, my primary care physician and my pharmacy. Or, I forget my name, fall asleep at fancy receptions, need an hour to cut three peppers and two onions and sometimes need to nag to myself to get things done.

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MS News: August 2016

Below are some MS-related topics that made the headlines this month. Do come back to check again, though, as the list will be updated every three days. Highlight! Guidelines for Neuropsychological Research in Multiple Sclerosis Multiple Sclerosis Journal Johns Hopkins Medicine: Multiple Sclerosis Benign MS Multiple System Atrophy Research $2 Million Grant to Study Fatigue in […]

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MS News: July 2016

The latest news on MS research, clinical trials, treatments, mental health, diet, exercise, lifestyle as well as business news and videos.

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40 Self-care strategies

We all get preoccupied with our personal, social and professional life sometimes. In doing so, we often forget that self-care is quite important. After all, ‘mens sana in corpore sano’ or ‘a healthy mind in a healthy body’ is one of the biggest and best gifts you can give yourself. For those less fortunate in […]

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MS News: May 2016

Highlight! People with MS Share How They Are Stronger Than MS and Maintain Independence on World MS Day May 25 Research Hebrew University and Aurum Ventures Team to Create a Diagnostic Blood Test for RRMS JC Virus Carries a Mutation in MS Patients That Amplifies Brain Disease Known as PML MS and Young Adult-onset Hodgkin […]

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Positive MS News: April 2016

Highlight! New injectable multiple sclerosis drug given go-ahead  Smoking Cessation Decelerates Brain Volume Loss in Multiple Sclerosis Research Catching glandular fever can prevent multiple sclerosis Drug boosts myelin regeneration in mice raising hope of future treatments for MS Gut Bacteria Affects Myelin Content and Induces MS-Like Depression in Mice, Study Reportsultiple sclerosis development risk linked with […]

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Use it or lose it!

“I much prefer a writer’s slow process from that one, flickering half a sentence in my head to it eventually making it into my handbag’s notebook or onto the internet. After all, writing in Ireland is a national illness, or a survival instinct of sorts. A lot of ideas come to me by my own form of public crowdsourcing; listening to people and picking up a few words here or there, thinking those words could eventually become a new piece.”

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