MS, Inc.
Perhaps losing my only sibling over a decade ago recreated the perspective on life I once held. It poured resilience into a mind that required to be strengthened for the many years ahead. Hope became the antidote to being tired of always being sick and tired.
Understanding clinical trials
A clinical trial is a research study in which volunteers receive investigational treatments under the supervision of a physician and other research professionals. These treatments are developed by pharmaceutical and biotechnology companies who select qualified physicians, also known as investigators, to conduct clinical trials to determine the benefits of investigational drugs. Clinical trials are usually conducted in three phases (I, II, III). Only a small number of people participate in phase I trials while the later phases involve a larger number of volunteers. To get involved in MS research in the US, please click here. © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used,…
CNS (videos)
The truth about Cinderella
Some days I go through life like a half-baked version of Cinderella. There’s promise at 8 AM, but by 11 AM my fairytale book is closed until further notice. In the background, that all-important clock keeps ticking forward, but my body is in a rut: sleeping, eating, exercising, resting, more eating, more sleeping and back again. And that Cinderella shoe? Taken by someone else altogether. Very much like the 11 AM dip in your energy levels, mine resembles a psychologically broken record: I keep finding out I am 100% present, but physically I’m not all there.
Do I have stupid written on my forehead?
Can you recall what life was like before this craziness started? Nope? Neither can I. There is a bit of mental derailing going on right now. Fatigue is back with a vengeance. I am so excellent in not sleeping well, that when I do, it’s a reason to organise a party, or rather, a pyjama gala. Sponsored by MS. And it’s undoubtedly impacting my thinking. No, seriously, having MS is not a simple task, job or status. It’s always there, in the background. Or in the limelight. In the shower. In bed.
Something’s on the way!
When you’re standing in the shower and you get a fab idea to write about, but can’t remember what it was 3 minutes later… Something’s in the works, and it’ll be posted here by the end of tomorrow! In the meantime, why not catch up with these… The five-second MS rant Magnetic voices MS Anxiety The MS blame game Paper dreams Oh my god, I am (so not) dying! Multiple Sclerosis Ireland & Novartis Blog awards! MS Treatments (July 2017) 15 Essential MS Websites (2017) 20 Best Personal Blogs about MS (2017) © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van…
The five-second MS rant
When physical restraints curb your potential, you realise that you want so more from your life. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential.
