MS News: May 2014
With a 14-day delay in posting some positive news about MS, I’d like to offer my apologies and no, I absolutely haven’t forgotten about you. As many people with MS know, May is about the busiest month for those who advocate and volunteer. World MS Day is the main day of the year for MSers, but before and after… sigh… there’s a lot to be said, done and needless to say… lots of sleep to be had. So without further ado, here is some news that might make your lips curl and your mind coo!
Irish public transport: access all areas?
"At this stage, I thought “Do I really have to walk with my coffin under my arm to get a seat when I’m physically leaning on a walking stick while holding the handrail as if it was my best friend?”"
World MS Day 2014 in Ireland
Wednesday, May 28th is World MS Day. All over the world, people will organise events, wear orange, volunteer, work and/or attend conferences to raise awareness about an illness that so far, still cannot be cured. While 2014 is the ‘European Year of the Brain,’ this year’s World MS Day theme is ‘Access.’ Whether this means access to information, medication, support, buildings, rights or services, somewhere near you people with MS, their families and MS societies will step forward and express their need for more awareness, understanding and hope that one day, MS will be eradicated for good.
World MS Day 2014
We all have dreams, wishes, hopes and fears. Mine? Find out more...
Medical Websites
[NEW] Reading Healthcare: A Medical Terminology Study Guide for Patients, Students and Professionals by the University of Illinois, Chicago, USA Cleveland Clinic eMedicine Health Everyday Health Johns Hopkins Medicine Mayo Clinic MedlinePlus WebMD Updated: September 8th, 2017 © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
Disability websites
CareGiving.com Invisible Disabilities Association National Center on Health, Physical Activity and Disability Convention on the Rights of Persons with Disabilities (UNCRPD) Disability and the United Nations European Network on Independent Living (ENIL) Universal Declaration of Human Rights Updated: February 4th, 2018 ©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2018. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
MS Organisations
MS Cure Fund – Excellent source of MS patient education programs Can Do Multiple Sclerosis Accelerated Cure Project for MS Multiple Sclerosis Association of America Multiple Sclerosis Foundation Multiple Sclerosis Research Center of New York Myelin Repair Foundation Nancy Davis Foundation for Multiple Sclerosis NARCOMS Registry Bike The US For MS MS MOMS Multiple Sclerosis Research Institute MS World, Patients Helping Patients Updated: June 12th, 2018 ©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
