What happened when you weren’t looking!

We often become too focused on the serious moments in life, yet we can learn as much about the funnier side of life with a chronic illness, or from those that show us grace in defeat. I was therefore incredibly surprised to find out that my blog was among the 10 Best Blogs of 2018 […]

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Book case sitemap

Home About IMSM History of MS 19th century 1900-1940 1950s 1960-1980 1990-2010 MS Explained What is MS? How MS Affects Brain Cells What causes MS? Types of MS Early signs of MS MS Symptoms Do I Have Multiple Sclerosis or Another Disease? Updated McDonald Criteria (2017) What is an MS relapse? Central Nervous System Central […]

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I am not my brain

Vintage clock with white flowers

“What’s wrong with my brain?” doesn’t automatically mean, “Is my mind, my soul therefore broken as well?”

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What singing taught me about life with MS

Black & white image singlng

It is hard to explain the following depth of reality. One morning shortly after my diagnosis, I woke up and thought, “From now on, I will wake up sick every day, and I need to accept that I will never get better again – unless a cure is found.”

That level of new normals isn’t easy. Then again, finding something black to wear while standing in front of a wardrobe filled with black clothes only, isn’t either. The same goes for the many pairs of black shoes, black rings, and necklaces.

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The day I stopped being weak

Tired person running

You never know how strong you are until being strong is the only option you have. How true is this? You lose a parent, a brother or sister, or someone else you dearly loved and yet, time goes on. Time has to go on. For your family, for yourself. Years later you realise you went […]

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Why I should be a brainiac, but I’m not

OMG shock and awe

It happened again. Just when I attempted to maximise my brain, it decided to take over and run the show. It’ll be fun, it said. But, it was so not pretty. Not even by a long mile. With so much physical pain and hence collected a fair amount of neurology-related knowledge due to life with MS, […]

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You will survive!

To this day, 13 years post-diagnosis, I am still prone to having conscious/unconscious battles. I am past the “woe is me” period that tried to knock me sideways at first, but I still have pacing issues that lay bare any ineffectiveness I attribute to myself.

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MS News: January 2018

MRI brain scan

Your monthly MS news is back after spending a few months in the cooler. It will continue as before, with highlights, news on research and clinical trials as well as lifestyle, diet and mental and emotional health. If you found an article you want to add to this post, please let me know. Highlight! 5 […]

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The story in all of us

MS is a mere aspect, label or classification. My story is therefore not one of heroism or tragedy, satire or drama, cheap thrills or grandeur. Showing up for myself in my own life means taking responsibility for the good and the bad while also trying to achieve goals I set myself for 2018.

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