Paper dreams

screenshot-www trendycovers com 2015-08-16 10-43-15

Have you ever wondered, “What exactly is my purpose on our little shining blue ball floating around in our vast universe?”

Have you?

Congratulations, so have I!

It took me the better part of my teenage years – if not very young adult life – to get to the stage where I thought, “Yes! Eureka! Yes, I found out what I am doing here!”

Translated, it sounded more like this, “I know where I am going to live!”

Part of the master plan that had been hiding in my unconscious mind had already been set in motion, albeit drifting rebelliously between my conscious and the harder to access unconscious level, before mischievously appearing again.

Continue reading “Paper dreams”

MS News: April 2017

MS News: April 2017

Highlight!

  1. Canadian Study of MS-Prone Family Proves that in Rare Cases, Multiple Sclerosis is Inherited
  2. Large Family Study Strengthens Case for Inherited Multiple Sclerosis
  3. New Survey Finds Multiple Sclerosis Patients Struggle with Misdiagnosis and Invisible Symptoms

Continue reading “MS News: April 2017”

Jammed filter!

Image memory thinking
For more on memory and thinking, click on the above image (©MS Ireland)

Every so often, people say things that shouldn’t be said.

Literally.

Some things just shouldn’t.

Us humans – living, breathing, excessively addictive to social media – have to endure the result of a very selfishly applied verb.

We communicate. And not always very well.

In fact, I am sure your brain-to-mouth filter runs into trouble every so often, and you have suffered from that same technical glitch just as much as I have.

We just cannot take back our words.

Continue reading “Jammed filter!”

MS News: March 2017

MS News: March 2017

Please allow me some nepotism and introduce you to the honourable American/Irish author and my friend Trevis Gleason! He penned a fantastic, witty, humorous and moving memoir about a very unexpected MS diagnosis, ending an old and starting a new career and fulfilling his dream of living in Ireland. You can buy his book here:

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017

  1. Society Releases Statement on American Health Care Act
  2. National MS Society Urges Lawmakers to Oppose American Health Care Act
  3. Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part D: Addressing
  4. Researchers find patients’ annual financial burden under Medicare Part D is ‘too much too soon’

New book by the honourable American/Irish author and friend Trevis Gleason!

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight!

  1. Blood Diagnostic Test for Multiple Sclerosis to be Released in May 2017

Continue reading “MS News: March 2017”

[Throwback Thursday] Balancing life and a chronic illness

Oh, you can bet I am willing, I am usually more than willing. When physical restraints curb your potential, you realise that you want so more from your own life, and out of your own reality. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential.

It simply reminds you that being chronically ill sucks.

It’s energy being depleted in all the wrong places. There is no uptake to being ill. There is no room for maneuvering when you’re faced with an illness that will -quite literally- be there until you draw your last breath. Do take it from someone who’s already stared death in the face because of it; it is so not all it’s cracked up to be, honey.

To read the whole post, please go to: Balancing life and a chronic illness

©WVE and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

0% responsibility – 100% accountability

1ebc241f7cb451636a9ff3ccedcf4945Imagine this… Some time ago you were finally able to give answers to these two questions, “Who am I, and what is my purpose in life?” While admitting the questions were rather philosophical as well as personal, you are suddenly thrown back to square one, and you once again want to find out who and what.

Ouch.

Like most people, my answers came and went as every meaningful tide in life left a new imprint on my senses. Continue reading “0% responsibility – 100% accountability”

Single and chronically ill on Valentine’s Day?

Valentine'sDay Image

So, you’re single.

And chronically ill.

On Valentine’s Day.

But, what the heck, you don’t care.

You don’t care because you’re an alpha-woman even when you sometimes feel like a z-woman… zonked out on meds on the couch.

You don’t care because, seriously, you don’t have to go shopping to find sexy lingerie that’ll only cut off your air supply while wearing it.

You don’t care because you know that the only thing you can find in a chocolate box is a raised BMI.

You don’t care because you don’t thrive on baggage left behind by old flames. Continue reading “Single and chronically ill on Valentine’s Day?”

UNCRPD in Ireland – begging for change

c3bx_uwwaaetwyc

The last few months, I’ve read and watched more political news about Donald Trump than I could stomach. As a result, shortcut rambling and biased vernacular on Twitter now linger in my own vocabulary when I try to write.

While it is true that you cannot bring about transformation by using blank expressions or hyped-up buzzwords that portray unfairness, ignorance and baseless conjecture, there is a limit to what is morally and personally allowed. It’s fair to say, so, that I have never been so amazed and shocked by any politician in such a short time frame. More annoyingly, because I love psychology so much, I keep going back because I want to know more about Trump’s state of mind.

Continue reading “UNCRPD in Ireland – begging for change”

MS News: January 2017

clinicaltrials

Go red to Kiss Goodbye to MS campaign!

  1. Supporters in County Donegal asked to Help Kiss Goodbye to MS
  2. Supporters in county Longford asked to Help Kiss Goodbye to MS
  3. Co Leitrim people are being asked to help ‘Kiss Goodbye to MS’

Highlight!

  1. The top 10 drug launches of 2017
  2. The year in new drugs

Continue reading “MS News: January 2017”

💋 Kiss Goodbye to MS 2017 💋

s3dmvsjpwzpbtbpf2yepqgcsovic3hfh_gblfgsfq4m-300x252I agree it has been fairly quiet here. A lot has happened the past few months which required the usual RRS, the almighty Rest, Relaxation, and Sleep. New things are still taking shape, so do hang around or drop me an email.

💋💋💋 Pucker up in the meantime in February! Go RED to KISS GOODBYE TO MS, the global fundraising campaign, supported by MS Ireland also. Donate €4 to MS research when you text Smooch to 50300 💋💋💋

New posts will appear soon, though, so keep an eye on your email or WordPress account!

Talk soon!

Willeke

__________________________________________________________________________________________________

©WVE and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Happy 2017!

0fa847dbde9292e3416ab8f18642c119

New posts will appear here soon!

In the meantime, happy new year!

___________________________________________________________________________________________________

©WVE and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

MS News: November 2016

why-to-go-for-clinical-trials-best-treatment-for-health-issues1

Because of #DonaldTrump’s shock election in the US and his insistence on scrapping Obamacare once in office, I’ve added some sites and articles dealing with insurance etc.

Highlight!

  1. Health Insurance and Medicare
  2. Dumping Obamacare without a better plan is cruel
  3. How Trump Plan To Gut Obamacare Will Take Down Medicare
  4. ‘Trumpcare’ Proposals Could Cripple the Healthcare System
  5. Even If Donald Trump Changed The FDA Drug Approval Process, Patients Wouldn’t Benefit
  6. Repealing Obamacare Would Give A Tax Cut To Millionaires, Like Donald Trump
  7. President Trump Could Derail Obamacare By Dropping Legal Appeal
  8. Insurers use high drug costs to deter some Obamacare patients, economist says
  9. Americans are freaking out about losing Obamacare

Continue reading “MS News: November 2016”