World MS Day 2025: What I would tell my newly diagnosed self
Within your diagnosis lies the potential for transformation; it can either forge our strength or test our resolve, shaping us in profound ways. Mine was no different. Find out what I would tell my newly diagnosed self twenty years ago.
Come on, go red & kiss goodbye to MS!
From February 1st to March 18th MS Ireland, our national MS society, is taking part in Kiss Goodbye to MS, the first global major fundraising campaign that raises funds purely for multiple sclerosis research. Because of the reach of the initiative, it has the potential to accelerate around the world. Kiss Goodbye to MS started in Australia a few years ago and finally went global. Big names have added some clout to the events, like Shemar Moore of Criminal Minds whose mother lives with MS. Also, US actress Amy Schumer has spoken up about her father’s MS while Odile Frosini in France encouraged her students to go ‘red’. In Ireland, our own Rosanna Davison, Irish Ambassador, nutritional therapist, chart-topping author, as well as ex-Miss World, is helping spread the word…
World MS Day 2015
For more on World MS Day 2015, check these links: Twitter – Tweet @WorldMSDay and/or use #strongerthanMS Facebook – World Multiple Sclerosis (MS) Day Instagram – worldmsday YouTube – World MS Day Pinterest – World MS Day ©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
MS in numbers
"Instead of going into the possibility of ending their life in a wheelchair, I refer to the opposite side of the scale. When they say “But 25% of people with MS will end up in a wheelchair!” I say “Perhaps, but that means that 75% of people with MS will not end up in one at all!”
International platforms (*)
European Association of Neurological Societies European Brain Council European Committee for Treatment and Research in Multiple Sclerosis European Federation of Neurological Societies European Multiple Sclerosis Platform European Patients’ Forum European Register for MS / EureMS Multiple Sclerosis International Federation – Multiple Sclerosis International Federation website ©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
World MS Day 2014 in Ireland
Wednesday, May 28th is World MS Day. All over the world, people will organise events, wear orange, volunteer, work and/or attend conferences to raise awareness about an illness that so far, still cannot be cured. While 2014 is the ‘European Year of the Brain,’ this year’s World MS Day theme is ‘Access.’ Whether this means access to information, medication, support, buildings, rights or services, somewhere near you people with MS, their families and MS societies will step forward and express their need for more awareness, understanding and hope that one day, MS will be eradicated for good.
World MS Day 2012: Letter to my newly diagnosed self
Two years ago, the organisation of World MS Day, asked us to write a letter to our newly diagnoses self, no matter how long ago we were diagnosed: “If asked to write a letter to yourself today, to be read on the day you were first diagnosed, what would you say? Would you tell yourself to slow down and take stock? Or tell yourself to dive head first into living?” Dear me, “You have mild MS…” “Mild” is good, “mild” means that I can keep on working, “mild” means that I will be able to live with it. “It is just “mild” so nothing is wrong with me…” I remember every single minute of today, of my diagnosis. What was said; done; not acknowledged. I was told I would have…
