Happiness and MS
In short, I felt like gutting my immune system from my entrails. My mind from my brain. And my eyes' life experiences dunked in a glass jar filled with ethanol. Life with MS. Nobody said it would be easy. Or, straightforward.
A to Z of MS
You hear them each time you speak with your medical team: MS-related medical jargon can sound heavy and darken your thoughts. This list will be updated with easy to grasp terms, and if not, do not hesitate to send me a message.
Body image and MS, fake or not
The assumption that of the many invisible symptoms associated with MS, some can be faked - as if they're digitally pasted on someone - is flabbergastingly prejudiced and foolish. It portrays a clear lack of understanding of what MS as a neurodegenerative illness is and what its impact is one those living with it.
Oh, media, when will you ever learn? Stop calling it a cure!
Again, dear Media, you are one slick, quick fixer. You know what works: stories that touches people’s hearts and their emotions. You know it will definitely gather income. Good for you. A few short clicks to search, select all, enter, tag and publish. Job done. Imagine when clinical trials are over and done with already... And you didn’t look it up before hitting 'Publish'.
When life with MS is like The Clash’s ‘Should I stay or should I go’
We each tailor our own agenda on how best to adapt should this risk materialise, and in my view, the final outcome is achieved by writing, for the story writes itself, as if I am just a mere spectator while paper accepts the narrative of the illness.
Responsibility hurts
“When physical restraints curb your potential, you realise that you want so more from your own life, and out of your own reality. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential. It reminds you that being chronically ill sucks. It’s energy depleted in all the wrong places. There is no uptake to being ill. There is no room for manoeuvring when you’re faced with an illness that will -quite literally- be there until you draw your last breath."
Silence! (or how to break me using sounds)
"So yes, we all have a bit of that sh*t-life-syndrome every so often. Sadly, we cannot unlearn our illness or symptoms like we can unlearn unwanted behaviours. What a drastic symptom like this does teach us, though, is how we can best create a workaround that should lessen its impact on us."
