“Oh, you can bet I am willing, I am usually more than willing. When physical restraints curb your potential, you realise that you want so more from your own life, and out of your own reality. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential.
It simply reminds you that being chronically ill sucks.
It’s energy being depleted in all the wrong places. There is no uptake to being ill. There is no room for maneuvering when you’re faced with an illness that will -quite literally- be there until you draw your last breath. Do take it from someone who’s already stared death in the face because of it; it is so not all it’s cracked up to be, honey.“
To read the whole post, please go to: Balancing life and a chronic illness
©WVE and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
Imagine this… Some time ago you were finally able to give answers to these two questions, “Who am I, and what is my purpose in life?” While admitting the questions were rather philosophical as well as personal, you are suddenly thrown back to square one, and you once again want to find out who and what.
Like most people, my answers came and went as every meaningful tide in life left a new imprint on my senses. Continue reading
To write is to have a third eye on the world. You watch the world spin day after day, and in your mind, you write social commentary to give it a place in your life. Quite often, though, after reading your perceptions a few weeks later, you realise that what you witnessed has completely lost its meaning.
Like this, I have seen the best and the worst of what mankind had to offer the past six months.
There are people in today’s society who have the purest and most thoughtful minds you can wish for. They add serenity and integrity to your life, and they always bring out the best in you.
On the other hand, there are toxic people who have never learned what altruism and dignity is, and who lack insight into what makes people – including themselves – tick. They go on the attack without working out a game plan first and have a habit of calling you “oversensitive” or “you are just misinterpreting me” when you try to verbally counter their attack. Continue reading
New posts will appear here soon!
In the meantime, happy new year!
©WVE and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
Being a perfectionist, of course, it had to be precisely 200 days.
Six months and nineteen days between my first multiple sclerosis symptoms and its very diagnosis.
Little did I know that it would eventually transform my life.
It was September 2004, and I had just dropped off my mother at Dublin Airport for her return to Belgium. On the way home, a strange sensation took hold of the left side of my face, as if it had been injected with thick rubber. Thinking nothing of it, I went back to bed to catch up on lost ZZZs.
I slept for hours.
And hours. Continue reading
Not that long ago I was caught talking to my MS medication – all 28 tablets a day – in the hope they’d finally get their act together and start doing what they’re supposed to. Work. Things. Out.
I believe the phrase was, “If you are my Ross, I will be your Rachel.”
Sure, I’ve thought crazier things than that. If people would know what I’m thinking half the time, they’d take me straight to emergency and say I tore all the ligaments in my head.
Two of the biggest life lessons MS taught me, is that you can just as well have fun, and what you think, you become. A bit of semantics here and there. A touch of rhetoric too. And a tiny bit of Ubuntu if you like. Rather like, “I’m medically fascinating.”
I’m chronically fabulous too.
(Or so I am told)
I step on my own toes and hurt my own ego for the sake of applying a bit of black humour to the conversation to stop the person in front of me worrying about my physical state. So, I’ll be damned before I start taking myself too seriously. Stepping outside the box doesn’t work because I was never in the box, to begin with, and I never will be. Continue reading
Note: I am not a medical professional nor do I intend to provide any medical advice to anyone. Please see your physician or neurologist if you have any health care concerns. My intention is to provide accurate information from the perspective of an informed patient.
Sometimes it’s hard to pin down which illness you have, as symptoms can look and feel alike. This is the case with MS and fibromyalgia. However, they are very different illnesses.
Despite the overlap in symptoms, diagnostic methods and profile risks, having one doesn’t put you at a higher risk of having the other illness.
If you suspect you have MS or fibromyalgia, please seek medical advice. A rheumatologist will be able to tell you if you have fibromyalgia, and a neurologist if indeed you have MS.