World MS Day 2012
Tomorrow is World MS Day, highlighting the need for more research, better medication and spreading awareness of what MS is and what it does to people who have it. I often think that MS is a “lonely” illness. Because a lot of symptoms are misunderstood and/or not taken seriously by people who don’t have multiple sclerosis, MSers have to educate people in their environment about it. That doesn’t always go easily, and it often takes months if not years before some people finally realize that MS is a serious condition… “Lonely” because very often people around you simply do not know what it feels like to have maddening eye pains, or extreme fatigue. This is not because those people are not ranked high on the IQ ladder, but because some…
World MS Day 2012
Tomorrow is World MS Day, highlighting the need for more research, better medication and spreading awareness of what MS is and what it does to people who have it. I often think that MS is a “lonely” illness. Because a lot of symptoms are misunderstood and/or not taken seriously by people who don’t have multiple sclerosis, MSers have to educate people in their environment about it. That doesn’t always go easily, and it often takes months if not years before some people finally realize that MS is a serious condition… “Lonely” because very often people around you simply do not know what it feels like to have maddening eye pains, or extreme fatigue. This is not because those people are not ranked high on the IQ ladder, but because some…
World MS Day 2012: Letter to my newly diagnosed self
Two years ago, the organisation of World MS Day, asked us to write a letter to our newly diagnoses self, no matter how long ago we were diagnosed: “If asked to write a letter to yourself today, to be read on the day you were first diagnosed, what would you say? Would you tell yourself to slow down and take stock? Or tell yourself to dive head first into living?” Dear me, “You have mild MS…” “Mild” is good, “mild” means that I can keep on working, “mild” means that I will be able to live with it. “It is just “mild” so nothing is wrong with me…” I remember every single minute of today, of my diagnosis. What was said; done; not acknowledged. I was told I would have…
World MS Day 2012: Letter to my newly diagnosed self
Two years ago, the organisation of World MS Day, asked us to write a letter to our newly diagnoses self, no matter how long ago we were diagnosed: “If asked to write a letter to yourself today, to be read on the day you were first diagnosed, what would you say? Would you tell yourself to slow down and take stock? Or tell yourself to dive head first into living?” Dear me, “You have mild MS…” “Mild” is good, “mild” means that I can keep on working, “mild” means that I will be able to live with it. “It is just “mild” so nothing is wrong with me…” I remember every single minute of today, of my diagnosis. What was said; done; not acknowledged. I was told I would have…