Today I was reminded of a story I heard of a few years ago about a girl who lives with lupus and who tries to explain to a friend what life with a chronic illness, especially fatigue, is like. It is told in a very powerful and imaginative way that will hopefully shed a better light on how fatigue affects people living with MS, lupus and other illnesses that take a toll on daily life. In my view, it is the best piece of writing about fatigue I have ever read. As you know, one of my main disabilities is severe fatigue which is sometimes so energy-sapping that walking from my bed to the fridge asks for a rest in between. From the moment this level of tiredness became troublesome,…