What’s life if it’s not meant to be beautiful, or happy?
It’s not about scraping through, it’s not about being just half of who or what you ever thought you’d be as a person. Nonetheless, it’s about rising above pessimism, difficult situations and learning how to be happy in a world full of new normals.
When I was diagnosed in 2005, I felt a burning need to help others in the same kind of situation I found myself in by informing them what MS is, what it feels like and how others can help.
Living in a different country, having to learn about the often difficult Irish healthcare system, creating and sticking to medication schedules and trying to remember hospital appointments, all happened in a blur at times. Looking back now, I wonder how I ever managed. To my surprise I learned in no time, simply because there was no other way I could accomplish what I set out to do before my diagnosis: rise the corporate ladder and enjoy life while doing it.
True, I was diagnosed with relapsing/remitting MS, the second less evil brother of the four types of MS, which means that attacks or exacerbations would come and go in a wave of strong or new symptoms, before returning with new or worsened symptoms. At this stage in my life, it’s hard to see any remission on the horizon, but it could have been much worse, like being diagnosed with progressive MS or ALS as part of Motor Neurone Disease. It could have been a brain tumour, damage in the brain or spinal cord, or even a genetic disorder. Subsequently, yes… it could have been much worse. Continue reading “Life’s meant to be…”
Multiple sclerosis is an illness subject to many myths that turn out to be misconceptions believed by far too many. When you scratch the surface, you find stubborn tales that create unnecessary anxiety and sleepless nights for those just diagnosed.
So let’s just throw some of the many misconceptions out the door, shall we? Continue reading “10 bold myths about MS”
“Dwell on the beauty of life.
Watch the stars, and see
yourself running with them.”
(Marcus Aurelius, Meditations)
There’s no hiding when a MS relapse is in town. It arrived on my doorstep about 5 days ago, warts and all, and I’m still trying to hide. I could give you the nitty gritty technical bit of it, but I fear it wouldn’t read like a Booker prize novel. And that, is something I aspire to one day, just not today. Continue reading “Game, set, relapse!”
Last week I received an invitation to take part in the 2013 National Meeting Day panel discussion on September 28th by the MS Society of Ireland. Needlessly, I accepted straight away as ‘Being Active and Interactive’ is something that lies close to my heart.
If you’ve been part of my blogging community for a while, you already know my online involvement in regards to writing about life with multiple sclerosis as an unwelcome passenger. Because of this, adding something worthwhile to a panel discussion about how staying active and being part of an online community can lead to a very fulfilling pastime – no matter how dull or uninviting it sounds – is something I absolutely want to be part of.
As a child and teen, being involved and fighting for the good for those less well-off was something I wanted to carry into my adult life. However, after moving from Belgium to Ireland in 2002, this activity was pushed away to work hard on my career. I studied, did lots of overtime and enjoyed every second of it. Continue reading “Being active”
Note: I am not a medical professional nor do I intend to provide any medical advice to anyone. Please see your family doctor or neurologist if you have any health care concerns. My intention is to provide accurate information from the perspective of an informed patient.
Note: As an MS patient you can experience several or very few of the symptoms listed below, they can also vary in severity, duration and recurrence.
Note: Different people are likely to experience very different symptoms. Since no two people have exactly the same experience of MS, the disease course may look very different from one person to another.
Note: This is not a list of all my MS symptoms but a list of possible symptoms each MS patient can have.
Note: The majority of people with MS do not become severely disabled. Most people with MS learn to cope with the disease and continue to lead satisfying, productive lives.
Note: MS is not contagious and is not directly inherited.
|Autonomic nervous system problems
||Blood pressure and heart problems; difficulty breathing and swallowing
||Physical and/or mental exhaustion
|Inappropriately cold body parts
||Increase in severity of symptoms with heat
||Impaired sense of taste and smell
| Continue reading “MS Symptoms”
Please consult with your neurologist, MS nurse or GP if you feel your medication is not working as well as you had hoped. I am not a medical professional nor do I intend to provide any medical advice to anyone. Please see your family doctor or neurologist if you have any health care concerns. My intention is to provide accurate information from the perspective of an informed patient.
The following medication listed has only been found effect for people with Relapsing/Remitting MS, and for some people with Secondary Progressive MS.
For a complete list of available medication, go to: http://www.mstrust.org.uk/atoz/drugs.jsp
Continue reading “MS Medication”