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MS News: May 2017

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MS in the media – 2017 Meeting American Academy of Neurology (AAN)

  1. Aubagio in people at risk of MS
  2. Cladribine
  3. Gilenya
  4. Lemtrada long-term data
  5. Lemtrada and black people
  6. Opicinumab
  7. Siponimod
  8. Importance of early effective treatment
  9. NEDA challenged
  10. Measuring disease activity in progressive MS
  11. Predicting risk of conversion to SPMS
  12. Risk factors for MS in children and teenagers

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Oh my god, I am (so not) dying!

WMSD logo

You know you’re on to something when you recognise your medical file from afar, even when it’s tucked between 15 other colourful medical records.

Sadly, this is a fact that even World MS Day on Wednesday, May 30th can’t heal. Nevertheless, as a global community of approximately 2.3 million people with MS, being part of the solution – a.k.a. spreading awareness and pushing for a cure – can be infinitely rewarding. On WMSD, I feel an even greater purpose to be part of that solution, whether it is by attending disability-related meetings and spreading the word afterwards, or simply by becoming more conscious of the problems people with MS and other disabilities are facing in the world today.

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UNCRPD in Ireland – begging for change

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The last few months, I’ve read and watched more political news about Donald Trump than I could stomach. As a result, shortcut rambling and biased vernacular on Twitter now linger in my own vocabulary when I try to write.

While it is true that you cannot bring about transformation by using blank expressions or hyped-up buzzwords that portray unfairness, ignorance and baseless conjecture, there is a limit to what is morally and personally allowed. It’s fair to say, so, that I have never been so amazed and shocked by any politician in such a short time frame. More annoyingly, because I love psychology so much, I keep going back because I want to know more about Trump’s state of mind.

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MS News: January 2017

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Go red to Kiss Goodbye to MS campaign!

  1. Supporters in County Donegal asked to Help Kiss Goodbye to MS
  2. Supporters in county Longford asked to Help Kiss Goodbye to MS
  3. Co Leitrim people are being asked to help ‘Kiss Goodbye to MS’

Highlight!

  1. The top 10 drug launches of 2017
  2. The year in new drugs

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💋 Kiss Goodbye to MS 2017 💋

s3dmvsjpwzpbtbpf2yepqgcsovic3hfh_gblfgsfq4m-300x252I agree it has been fairly quiet here. A lot has happened the past few months which required the usual RRS, the almighty Rest, Relaxation, and Sleep. New things are still taking shape, so do hang around or drop me an email.

💋💋💋 Pucker up in the meantime in February! Go RED to KISS GOODBYE TO MS, the global fundraising campaign, supported by MS Ireland also. Donate €4 to MS research when you text Smooch to 50300 💋💋💋

New posts will appear soon, though, so keep an eye on your email or WordPress account!

Talk soon!

Willeke

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©WVE and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

disABILITY

Disable Inequality

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© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

MS News: July 2016

MS image

Researchers at Queen’s University Belfast have begun a £2 million research programme to investigate reversing the damage caused by Multiple Sclerosis.

Highlight!

  1. Childhood MS: A guide for parents
  2. Queen’s University Belfast Awarded £2M in Bid to Reverse Myelin Damage in MS
  3. Exploring Multiple Sclerosis from the Inside

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MS News: May 2016

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Highlight!

  1. People with MS Share How They Are Stronger Than MS and Maintain Independence on World MS Day May 25

Research

  1. Hebrew University and Aurum Ventures Team to Create a Diagnostic Blood Test for RRMS
  2. JC Virus Carries a Mutation in MS Patients That Amplifies Brain Disease Known as PML
  3. MS and Young Adult-onset Hodgkin Lymphoma May Share Underlying Causes, Study Says
  4. Gut Microbiota in Young MS Patients Is Higher in Pro-Inflammatory Bacteria Than Usual, Study Finds
  5. Sanofi Genzyme and Johns Hopkins Partner on MS Research Projects into Disease Progression
  6. Study of Immune System Response to Viral Infection Revives Possibility of Link Between MS and Viruses
  7. Gut Bacteria Affects Myelin Content and Induces MS-Like Depression in Mice, Study Reports
  8. Modern Medicine’s Promising Future for MS Treatment: Stem Cell Therapy
  9. Fluorosamine Seen to Boost Remyelination in MS Mouse Model by Blocking Scarring Molecules
  10. Combined Use of Imaging Techniques Allows Scientists to Peer Into Myelin Formation
  11. High Glutamate Levels in Brain Seen to Drive MS Progression
  12. MS Patients May Be Prone to Other Chronic Illnesses, Study Finds
  13. Key Pathway in Antibody B-Cell Production Identified, Important to Diseases Like MS
  14. Cognitive Difficulties Known to MS Traced to Problems in Nerve Cell Activity in Hippocampus
  15. Low Prenatal Vitamin D Linked to Later MS in Offspring

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Disability rights in Ireland, 3 years later

logoIn October 2013, I wrote a piece about Ireland’s non-ratification status for Blog Action Day, dedicated to human rights in the hope that the Convention on the Rights of Persons with Disabilities would be ratified sooner rather than later.

Three years on, the disability community in Ireland is still waiting on that very ratification.

The UNCRPD, the United Nations Convention on the Rights of Persons with Disabilities, is an international human rights treaty adopted by the United Nations General Assembly on 13th December 2006. It consists of a body of international experts that monitors implementation of the Convention by the States Parties. The UNCRPD provides the framework to promote, protect and ensure the rights of all people with disabilities and supports equal rights in all areas of life. Continue reading

Ireland Speaks No Language

Ireland speaks no language I cannot hear with my heart.

Sings no songs I cannot feel by their touch on my lips.

Holds no love I cannot embrace with my thoughts.

Ireland listens quietly,

Unconditionally.

©Willeke Van Eeckhoutte, 2013, 2016

#1916 #Ireland1916 #EasterMonday #RTE1916
#Easter1916 #1916Rising #EasterRising

Also see Kick-Ass Ireland!

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© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

 

No Place for Extremism

I may have been critical of my native country Belgium in the past, but yesterday’s events in Brussels solidified friendships and my love for my people’s resilience and way of life.

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IS, ISIL, ISIS, Daesh (or whichever way they want to be called next) may think they won another war on foreign soil, but the western world is ready to shatter further illusions of jihadism and hatred harder, faster and louder. There simply is no place for extremism in our world.

Many thanks to the emergency services, fire department, police, Belgian army and all those who helped people caught up in the terror attacks.

For updates on the ongoing situation, please visit the BBC News website here.

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© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Under-caffeinated writer. Please help.

Coffee imageAh, ladies and lads, by now you know I can be a bit kooky at times. Hell, I can even get a little cranky when chronic pain is interlaced with a whacky sense of fatigue. I will, therefore, try to remain un-kooky today.

Please allow me, so, to ask you for a small favour, no strings attached, no problemo if you can’t!

Where others might ask for a pint… I don’t drink alcohol, so I won’t fall down on my knees begging you for a shot of brain cell killers.

I also won’t fall down on my knees asking you for a fag… as I don’t smoke. If others want to turn their fine, red lungs to utter blackness, the true colour of hell… their lungs, not mine! Continue reading

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