A powerful letter to my MS

“I thought you were just another Monday morning case when you walked in,” my consultant said, followed by lots of apologies and the promise that I would be very well taken care of.”

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An Open Letter To Those Without MS

I’ve known about this letter for a while now, and sometimes I feel the need to read it again, as if by reading it once more, people around me will understand what having an incurable illness feels like even when they’re not the ones reading it. However, at the end of the day, I cannot […]

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World MS Day 2012: Letter to my newly diagnosed self

Two years ago, the organisation of World MS Day, asked us to write a letter to our newly diagnoses self, no matter how long ago we were diagnosed: “If asked to write a letter to yourself today, to be read on the day you were first diagnosed, what would you say? Would you tell yourself […]

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World MS Day 2012: Letter to my newly diagnosed self

Two years ago, the organisation of World MS Day, asked us to write a letter to our newly diagnoses self, no matter how long ago we were diagnosed: “If asked to write a letter to yourself today, to be read on the day you were first diagnosed, what would you say? Would you tell yourself […]

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MS News: May 2017

Research worker

2017 Meeting American Academy of Neurology (AAN) Aubagio in people at risk of MS Cladribine Gilenya Lemtrada long-term data Lemtrada and black people Opicinumab Siponimod Importance of early effective treatment NEDA challenged Measuring disease activity in progressive MS Predicting risk of conversion to SPMS Risk factors for MS in children and teenagers

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MS News: April 2017

Research worker

The latest MS news about clinical trials, research, treatments, mental & emotional health, diet and lifestyle, including highlights from Barts MS Blog

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MS News: March 2017

Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017 Society Releases Statement on American Health Care Act National MS Society Urges Lawmakers to Oppose American Health Care Act Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part […]

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MS News: January 2017

Go red to Kiss Goodbye to MS campaign! Supporters in County Donegal asked to Help Kiss Goodbye to MS Supporters in county Longford asked to Help Kiss Goodbye to MS Co Leitrim people are being asked to help ‘Kiss Goodbye to MS’ Highlight! The top 10 drug launches of 2017 The year in new drugs

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MS News: October 2016

Highlight! Influenza, Vaccinations, MS Brain cognitive exhaustion is real for people with Multiple Sclerosis

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What causes MS?

Newly diagnosed people find this the most frustrating and problematic question about MS. Neurologists and other healthcare providers consider it just as difficult having to tell someone that there is no known cause or cure yet. Needless to say, the race to understand what causes MS is ongoing, and this will eventually lead to more […]

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MS News: July 2016

The latest news on MS research, clinical trials, treatments, mental health, diet, exercise, lifestyle as well as business news and videos.

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Positive MS News: August 2015

Vitamin D research was once again a recurring news story this month, with more studies linking lack of vitamin D to MS. Also widely reported was the news Novartis bought GlaxoSmithKline’s remaining rights to Ofatumumab, an investigational multiple sclerosis medicine, for up to $1 billion. Highlight! Gene study finds link between multiple sclerosis and low […]

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Positive MS News: April 2015

Research news Miconazole and clobetasol may be effective as multiple sclerosis therapies Drug Derived From Sea Anemone Shows Promise Against Psoriasis, MS Novel Drug From Nature Shows Early Promise ‘Brainbow’ illuminates cellular connections MS Association of America releases 2015 multiple sclerosis research update B Vitamin Promising in Progressive Multiple Sclerosis Phenytoin protects against optical damage […]

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Positive MS News: December 2014

Well, it was a busy December, in more ways than one. I hope you all had a great Christmas and wish you the best for 2015. From the amount of research and clinical news we keep hearing about month after month, I can only be optimistic for the future. A cure will not happen tomorrow, […]

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Positive MS News: October 2014

“54 New MS Research Projects to Receive Millions of Dollars in Funding.” I can only jump up and down like a child at Christmas reading about this. Even if or when we’re struggling with our illness, we know that lots is happening to help us forward in life. So please, enjoy the list with research & clinical trial news, updates on current medication and business & general news.”

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MS Societies around the World

Oops… We can’t find the page you’re looking for. Maybe this page might help? MS Societies around the World (2018) Or, why not travel around IMSM with me by visiting these pages? A powerful letter to my MS Do I have stupid written on my forehead? MS anxiety I’m an ex and I’m loving it! You […]

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World MS Day 2014 in Ireland

Wednesday, May 28th is World MS Day. All over the world, people will organise events, wear orange, volunteer, work and/or attend conferences to raise awareness about an illness that so far, still cannot be cured. While 2014 is the ‘European Year of the Brain,’ this year’s World MS Day theme is ‘Access.’ Whether this means […]

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MS Trust 21 Challenge

“Here’s a breakdown of the challenge (you will be linked to the MS Trust website to enter). Like they say: “Keep the trust posted on the challenges you’re taking part in by sharing your stories and photos on Twitter and Facebook using hashtag #MSWeek!””

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Positive MS News: April 2014

Research results Enhanced uptake of multiple sclerosis-derived myelin by THP-1 macrophages and primary human … 7thSpace Interactive (press release) – The pathological hallmark of multiple sclerosis (MS) is myelin phagocytosis. It remains unclear why microglia and macrophages demyelinate axons in … Textured insoles could be a positive step for people with MS UQ News – University […]

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