You’ve probably been there before.
You say to yourself… “I will absolutely, unequivocally, no-doubt-about-it stay under the duvet to get rid of a bad ear infection, facial pain, unrelentless fatigue and a bout of the flu.”
Sometimes you also think, “I suppose everyone has a point when they say I have to listen to my body a little bit more.” Continue reading
Some days I feel like a half-baked Cinderella. There’s some promise at 8am, but by 10am my fairy tale book is closed until further notice. In the background, that all-important Cinderella clock keeps ticking forward. My body is in a rut: sleeping, eating, exercising, resting, eating, sleeping and back again.
And that Cinderella shoe?
Taken by someone else altogether.
In other words, and very much like a psychological broken record, I keep finding out that I am 100% present, but physically I am a goner. Continue reading
This post features a long, infochart, which you can find when you click → Continue reading
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One of the many issues ill people struggle with, is trying to explain how or what their clinical symptoms feel like. Vice versa, and after another round of being a guinea pig during clinical excellence exams for already established doctors, it was clear that many people request non-medical terminology from their doctors also. Continue reading
With World MS Day 2015 now gone for another 365 days, I shared a few words yesterday about one of the things I hardly ever talk about in regards to my own MS: the day I woke up without sight in my left eye, and the subsequent fear of permanently losing my eyesight.
We use our eyes to learn, navigate, assess and appreciate. They help our brain understand our environment and sometimes, as peculiar as it sounds, we use them to listen. Continue reading
‘Hypochondria? It’s the only disease I haven’t met yet.’ One of the better jokes I can actually remember, as I simply don’t do long ones.
MS? Awkward, puzzling, easier said than done, and the type of illness that carries this tagline, “The illness is mine, but the tragedy theirs,” when asked how your family feels about your condition. Buzzwords that don’t exactly calm down an overactive mind.
Any illness is unwelcome, that much we can agree on. MS can strike in so many different ways that your life often resembles a war zone. When I entered the MS academy, I read the small print and knew it wouldn’t be a 365-day holiday. But, if one good thing has come from being diagnosed ten years ago, it’s the perception that no matter what happens, life goes on.
And boy, does it go on. Continue reading
I used to be a lot of things. Busy. Book addict. Ireland lover. Passionate. College student… and perhaps a tad crazy also.
But then friends started saying that I was “slowly turning into a blonde”. Physical discrimination on the basis of hair colour aside, I felt they had a point. Concentration skills went from hero to zero. Walking from the couch to the fridge a massive undertaking. In tears in front of the staircase after work because I had to sleep for an hour before being able to scale its height.
In short: I knew I was ill.
It turned out I was ill. Continue reading