- Less vitamin D and melatonin bad for multiple sclerosis
- Multiple sclerosis relapse risk influenced by melatonin levels
- Melatonin could help treat multiple sclerosis
- Melatonin Linked to Seasonal Relapses of Multiple Sclerosis
Some days I feel like a failed, half-baked Cinderella. There’s some promise at 8am, but by 10am my fairy tale book is closed until further notice. In the background, that all-important Cinderella clock keeps ticking forward. My body is in a rut: sleeping, eating, exercising, resting, eating, sleeping and back again.
And that Cinderella shoe?
Taken by someone else altogether.
In other words, and very much like a psychological broken record, I keep finding out that externally I am 100% present, but mentally and physically I am a goner. Continue reading
Rugby world cup.
England in a fashion faux-pas. Coin toss aside, they resembled players of Wales, China, Japan or Kyrgyzstan (Fijian, red is Fijian).
Mum’s nine day visit to Ireland now over.
Visited Dublin Zoo once again. New camera making me rather shutter-slow, hence prevalent photographic bonding with rear ends of several animals.
Otherwise, hardly left the house.
Thank you, MS. Living with a chronic illness is not all it’s cracked up to be. Chronic means chronic. I don’t get to choose the days, the hours, the moments.
Hence, a triad of medical events in the space of twelve days, now extended into a three-week period.
Flu. Impatient, it could not wait landing on my doorstep before that all important flu jab. Must remember that viruses follow idiotic timetables and adapt accordingly.
Seriously. Continue reading
MS & Me, the group blog of MS Ireland for which I also write, has been shortlisted
for the Blog Awards 2015 edition in the company Best Health and Wellbeing category!
We need YOUR vote though to become a finalist.
*** The PUBLIC VOTE is now open for the 2015 Blog Awards Ireland! ***
Voting will be open for TWO weeks from Monday, 7th September!
The other 70% will be decided by a panel of judges.
Please cast your vote below by clicking here,
or on the colourful Blog Awards image below!
Neurologically challenged by MS and personally by her will to succeed, Willeke is a disability awareness advocate seeking to improve neurological services in Ireland. By highlighting difficult issues that come with a MS diagnosis, she hopes her words and tenacity can bring justice to people most in need of a modern, inclusive healthcare system that looks after every aspect of life.
©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
But why would someone have needle anxiety when what you’re about to self-inject every day, in fact slows down the progression of your chronic illness?
Although my emotions regarding needles does not amount to belonephobia, I have gone through moments where I simply could not press a needle in my skin. Using an Autoinject only made it worse. Pain doesn’t scare me (anymore). In fact, I’m going through a pretty rough time right now because of trigeminal pain. Knowing however, what the prerequisite was for having to inject myself on a daily basis, has, on occasion kept me from self-medicating. Continue reading
Vitamin D research was once again a recurring news story this month, with more studies linking lack of vitamin D to MS.
Also widely reported was the news Novartis bought GlaxoSmithKline’s remaining rights to Ofatumumab, an investigational multiple sclerosis medicine, for up to $1 billion.
And then there was that other happy thing that happened today: the longlist publication of the Blog Awards Ireland 2015 competition. I have YOU to thank for entering my blog, and for continuing to welcome new posts and ideas. Needless to say, I equally welcome the time you spend reading and commenting on my blog.
Because this is my 3rd time being longlisted (and because I am my own harshest critic), my next goal is finding my name on the shortlist. That’s when I feel most comfortable, a little bit of a challenge, you, my laptop, that urge and the ever-present need to champion patient rights and raise public awareness on what life with an invisible illness is like.
Each day, in fact, I wish I could write more. I can’t be oblivious though to the fact that the very reason I started writing, is a chronic, neurodegenerative illness. The urge to write is a very definite one, yet it is often tempered by painful eyes, obtrusive fatigue and intense facial pain.
But… onwards and upwards we go.
After all, the secret of learning to be sick?
Love your life more than your pain.
Neurologically challenged by MS and personally by her will to succeed, Willeke is a disability awareness advocate seeking to improve neurological/MS services in Ireland. By highlighting difficult issues that come with such a diagnosis, she hopes her tenacity can bring some dignity to people most in need of a modern, inclusive healthcare system that looks after every aspect of life.
© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
We are having a divorce of sorts.
Because of the ever-growing volume of my blog, and WordPress slower as time goes on, I’ve finally decided it’s time to move blog posts about Ireland, books, writing etc to a new blog called Kick-Ass Ireland! After all, this is a blog about multiple sclerosis with facts, figures, information sheets and my journey with MS.
Ireland, books and writing does take up all my thoughts, but for now posts related to them are better housed elsewhere. The next few weeks will be busy, and I will sit down and put some serious thought in how to expand my blog once those weeks are over. Continue reading