Tag Archives: Multiple Sclerosis

What a difference a needle makes

Copaxone imageNeedle anxiety. We all went through childhood being afraid of injections.

But why would someone have needle anxiety when what you’re about to self-inject every day, in fact slows down the progression of your chronic illness?

Although my emotions regarding needles does not amount to belonephobia, I have gone through moments where I simply could not press a needle in my skin. Using an Autoinject only made it worse. Pain doesn’t scare me (anymore). In fact, I’m going through a pretty rough time right now because of trigeminal pain. Knowing however, what the prerequisite was for having to inject myself on a daily basis, has, on occasion kept me from self-medicating. Continue reading

Positive MS News: August 2015

Bibiana Bielekova, MD, is the new director of UC's Waddell Center for Multiple Sclerosis and and associate professor of neurology. Reference Jan 06 "Findings".

Vitamin D research was once again a recurring news story this month, with more studies linking lack of vitamin D to MS.

Also widely reported was the news Novartis bought GlaxoSmithKline’s remaining rights to Ofatumumab, an investigational multiple sclerosis medicine, for up to $1 billion.

Highlight!

  1. Gene study finds link between multiple sclerosis and low vitamin D
  2. Gene study backs up link between vitamin D and multiple sclerosis risk
  3. Low levels of vitamin D may cause multiple sclerosis
  4. Vitamin D deficiency direct cause of multiple sclerosis (MS): Study

Continue reading

#bloggies2015 – Longlisted! Again!

Image Awards Longlisted 2015And then there was that other happy thing that happened today: the longlist publication of the Blog Awards Ireland 2015 competition. I have YOU to thank for entering my blog, and for continuing to welcome new posts and ideas. Needless to say, I equally welcome the time you spend reading and commenting on my blog.

Because this is my 3rd time being longlisted (and because I am my own harshest critic), my next goal is finding my name on the shortlist. That’s when I feel most comfortable, a little bit of a challenge, you, my laptop, that urge and the ever-present need to champion patient rights and raise public awareness on what life with an invisible illness is like.

Each day, in fact, I wish I could write more. I can’t be oblivious though to the fact that the very reason I started writing, is a chronic, neurodegenerative illness. The urge to write is a very definite one, yet it is often tempered by painful eyes, obtrusive fatigue and intense facial pain.

But… onwards and upwards we go.

After all, the secret of learning to be sick?

Love your life more than your pain.

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Image thumbnail About MeAbout Willeke

Neurologically challenged by MS and personally by her will to succeed, Willeke is a disability awareness advocate seeking to improve neurological/MS services in Ireland. By highlighting difficult issues that come with such a diagnosis, she hopes her tenacity can bring some dignity to people most in need of a modern, inclusive healthcare system that looks after every aspect of life.

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Time to go our separate ways

screenshot-devineireland wordpress com 2015-08-26 17-38-15

We are having a divorce of sorts.

Because of the ever-growing volume of my blog, and WordPress slower as time goes on, I’ve finally decided it’s time to move blog posts about Ireland, books, writing etc to a new blog called Kick-Ass Ireland! After all, this is a blog about multiple sclerosis with facts, figures, information sheets and my journey with MS.

Ireland, books and writing does take up all my thoughts, but for now posts related to them are better housed elsewhere. The next few weeks will be busy, and I will sit down and put some serious thought in how to expand my blog once those weeks are over. Continue reading

10 ‘Little rebel, me’ mistakes I made since my MS diagnosis

Image by Willeke

Are you a list person? I am, that’s a given.

After wasting time on websites like List Challenges, I thought, ‘Well, how about the ten worst things I’ve done since being diagnosed, with a follow-up on the best things I’ve done since that day in 2005?’ Quotes are added to underline my thinking, ideas or just as some way to kick-start goodness in my life.

Once the 10 best things have found their way onto paper, I will link them to each other here if you want to read lists for a while!

Continue reading

MS, 50 shady ways of being sick

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I miss the sound of rain on my bedroom windows. Not one to feel depressed by bad weather, I physically start to thrive once more autumn-inspired weather sets in after those long, miserable months when temperatures were above 17°C.

My Spotify account on my smartphone is bloated with new soft jazz and Norah Jones tunes to accompany me on walks, and I cannot wait for those days to arrive. I can almost feel a tinge of cool air already. Sadly for those sun worshipers looking to add more cancerous rays of sunshine in Ireland, summer has been rather so-so. Continue reading

Are you getting enough?

No… no… put that wild thought out of your mind. You, my dear, are thinking of something else altogether. There are no sexy half-clad people involved. No Massive Attack or something more contemporary playing in the background. No soft light that shows your funny left side in a better light.

In fact, what I would like you to focus on, is the place of my dreams.

A library. A museum. A near-empty supermarket.

Dublin Zoo at 9.30am. The Irish countryside. An empty park.

All this, and then just a little bit more. Continue reading

Early signs of MS

Image of blue eyeWhile discovered 150 years ago, the cause of MS remains unknown. What we do know is that nerve damage is caused by inflammation, but the cause of the inflammation is still unknown. This means that there is no cure yet.

Because of the different types of MS and the plethora of possible symptoms, 50+ symptoms can be linked to MS. Many people can therefore go undiagnosed for any length of time.

You may have a single symptom, and then go months or years without any others. A problem can also happen just one time, go away, and never return. For some people, the symptoms become worse within weeks or months. Some symptoms of multiple sclerosis are mild and cause inconvenience; others may be severe and debilitating.

Continue reading

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