Tag Archives: MS

Let’s be frank

the_holstee_manifesto_wallpaper_by_spiderio-d5cp0ei

“Life is 10% what happens to you and 90% how you react to it.”
(Charles Swindoll)

If you’re running behind on making a few new year’s resolutions, or perhaps call them ‘new year’s illusions’ by now instead, all is not lost. There are small things you can work on every day of the year.

Given its absurd sense of unpredictability, life with MS is challenging at the best of times. Anything turbulent added to it, and it soon becomes a slalom course with so many twists and turns that each one seems icier than the ones before. Continue reading

Whát?! 2015 in review!

The WordPress.com statistics monkeys prepared a 2015 annual report for this blog.

With a total of 22,599 views from 13,765 visitors in 137 countries in 2015 and with 1,857 followers so far, I cannot be any happier. Writing and posting has been slow the last few months, but I will be back soon enough with new, hopefully inspiring and helpful content.

Thank you each and everyone of you who found your way to my writing, and please do let me know if you have any tips or questions on billie@irelandms.com

Here’s an excerpt:

The concert hall at the Sydney Opera House holds 2,700 people. This blog was viewed about 22,000 times in 2015. If it were a concert at Sydney Opera House, it would take about 8 sold-out performances for that many people to see it.

Click here to see the complete report.

Responsibility hurts

Responsibility.

Fabulous for those who own it, bad for those who don’t.

I am one of those people who quickly feels guilty about having to cancel hospital or advocacy appointments when I’m too unwell to leave the house. It might be innate, or it might just be one of those famous Irish guilt-trip things that are attached to my dwindling Belgian roots. Either way, I often “suffer” from feeling “over-responsible” when I fail to do something.

After watching Dole Life, a program on Irish television about the difficulties young adults face trying to find (and keep) a job, the topic of responsibility and maturity was on everybody’s lips the following days and weeks. Shauna (Jake) had just started a new job, yet in the first week of her employment, she arrived late for four consecutive days. She said coming out as transgender was the reason for being late, but her reasoning didn’t help her cause, and it might, in fact, have turned more people against her than she intended to. Continue reading

Bed?!

original

You’ve probably been there before.

You say to yourself… “I will absolutely, unequivocally, no-doubt-about-it stay under the duvet to get rid of a bad ear infection, facial pain, unrelentless fatigue and a bout of the flu.”

Sometimes you also think, “I suppose everyone has a point when they say I have to listen to my body a little bit more.” Continue reading

Positive MS News: October 2015

clinical

It was a busy month. ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis Congress; October 7 – 10, 2015 in Barcelona) came and went, with insight and data offered on existing and new therapies. Continue reading

13!

enhanced-buzz-wide-32450-1426605163-23

Thirteen years ago today I moved to Ireland. A teenage dream turned reality.

Little did I know that 2,5 years later, my life would be transformed in a way I had never imagined. Still, there are no regrets, and where anger could have resided, none is left for two chronic illnesses that could easily have been my downfall.

Not one to dwell on issues past, I never allowed myself to live in Oscar Wilde’s famous gutter for a long period. When he said, “We are all in the gutter, but some of us are looking at the stars,” I realise I still am that stargazer, that dreamer, that person who loves Irish history and sociology, nature and literature, photography and psychology.

I am also still that believer in historical and moral justice, a dreamer who wants to see eight centuries of domination over Ireland undone, but knowing all too well that from a political and royal viewpoint, this is dream one dream too many. Continue reading

PLEASE VOTE! MS Ireland company blog shortlisted!

MS & Me, the group blog of MS Ireland for which I also write, has been shortlisted

for the Blog Awards 2015 edition in the company Best Health and Wellbeing category!

We need YOUR vote though to become a finalist.

*** The PUBLIC VOTE is now open for the 2015 Blog Awards Ireland! ***

Voting will be open for TWO weeks from Monday, 7th September!

The PUBLIC VOTE will be worth 30% of the overall mark.

The other 70% will be decided by a panel of judges.

Please cast your vote below by clicking here,
or on the colourful Blog Awards image below!

Thank you!

Ava, Diana, Trevis, Joan, Declan, Aoife, Lucina, Helen, Niamh, Emma & Willeke

Please share…

Blog_Awards_Shortlist_iPiccy_Painting

_____________________________________________________________________________________________________

About Willeke

Neurologically challenged by MS and personally by her will to succeed, Willeke is a disability awareness advocate seeking to improve neurological services in Ireland. By highlighting difficult issues that come with a MS diagnosis, she hopes her words and tenacity can bring justice to people most in need of a modern, inclusive healthcare system that looks after every aspect of life.

©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

What a difference a needle makes

Copaxone imageNeedle anxiety. We all went through childhood being afraid of injections.

But why would someone have needle anxiety when what you’re about to self-inject every day, in fact slows down the progression of your chronic illness?

Although my emotions regarding needles does not amount to belonephobia, I have gone through moments where I simply could not press a needle in my skin. Using an Autoinject only made it worse. Pain doesn’t scare me (anymore). In fact, I’m going through a pretty rough time right now because of trigeminal pain. Knowing however, what the prerequisite was for having to inject myself on a daily basis, has, on occasion kept me from self-medicating. Continue reading

1 2 13
Follow

Get every new post delivered to your Inbox.

Join 1,898 other followers

%d bloggers like this: