Tag Archives: MS

Positive MS News: August 2015

Bibiana Bielekova, MD, is the new director of UC's Waddell Center for Multiple Sclerosis and and associate professor of neurology. Reference Jan 06 "Findings".

Vitamin D research was once again a recurring news story this month, with more studies linking lack of vitamin D to MS.

Also widely reported was the news Novartis bought GlaxoSmithKline’s remaining rights to Ofatumumab, an investigational multiple sclerosis medicine, for up to $1 billion.

Highlight!

  1. Gene study finds link between multiple sclerosis and low vitamin D
  2. Gene study backs up link between vitamin D and multiple sclerosis risk
  3. Low levels of vitamin D may cause multiple sclerosis
  4. Vitamin D deficiency direct cause of multiple sclerosis (MS): Study

Continue reading

#bloggies2015 – Longlisted! Again!

CKC3m6sWUAEnJyt.png largeAnd then there was that other happy thing that happened today: the longlist publication of the Blog Awards Ireland 2015 competition. I have YOU to thank for entering my blog, and for continuing to welcome new posts and ideas. Needless to say, I equally welcome the time you spend reading and commenting on my blog.

Because this is my 3rd time being longlisted (and because I am my own harshest critic), my next goal is finding my name on the shortlist. That’s when I feel most comfortable, a little bit of a challenge, you, my laptop, that urge and the ever-present need to champion patient rights and raise public awareness on what life with an invisible illness is like.

Each day, in fact, I wish I could write more. I can’t be oblivious though to the fact that the very reason I started writing, is a chronic, neurodegenerative illness. The urge to write is a very definite one, yet it is often tempered by painful eyes, obtrusive fatigue and intense facial pain.

But… onwards and upwards we go.

After all, the secret of learning to be sick?

Love your life more than your pain.

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Image thumbnail About MeAbout Willeke

Neurologically challenged by MS and personally by her will to succeed, Willeke is a disability awareness advocate seeking to improve neurological/MS services in Ireland. By highlighting difficult issues that come with such a diagnosis, she hopes her tenacity can bring some dignity to people most in need of a modern, inclusive healthcare system that looks after every aspect of life.

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

10 ‘Little rebel, me’ mistakes I made since my MS diagnosis

Image by Willeke

Are you a list person? I am, that’s a given.

After wasting time on websites like List Challenges, I thought, ‘Well, how about the ten worst things I’ve done since being diagnosed, with a follow-up on the best things I’ve done since that day in 2005?’ Quotes are added to underline my thinking, ideas or just as some way to kick-start goodness in my life.

Once the 10 best things have found their way onto paper, I will link them to each other here if you want to read lists for a while!

Continue reading

Are you getting enough?

No… no… put that wild thought out of your mind. You, my dear, are thinking of something else altogether. There are no sexy half-clad people involved. No Massive Attack or something more contemporary playing in the background. No soft light that shows your funny left side in a better light.

In fact, what I would like you to focus on, is the place of my dreams.

A library. A museum. A near-empty supermarket.

Dublin Zoo at 9.30am. The Irish countryside. An empty park.

All this, and then just a little bit more. Continue reading

Positive MS News: July 2015

Image reseach methods

Because of the summer holidays, less positive news has filtered through. Either way, enjoy, and hopefully more next month!

Research

  1. Gene Regulating Treatment Response in Multiple Sclerosis Identified
  2. New Study Evaluates The Role of MRI in Monitoring MS Progression Multiple Sclerosis
  3. Nano-Drugs in Liposomes Could Treat Multiple Sclerosis
  4. Altered Immune Cells in Relapsing Remitting Multiple Sclerosis Patients Cause Reduced Immune Capacity
  5. MS Study Uses Findings on Quality of Life Issues To Develop New Confidence-Building Intervention
  6. Nutra Pharma Working on Pediatric MS Treatment Based on Venom Multiple Sclerosis News Today
  7. Identifying MS Gene Mutations Could Make Personalized Treatment Possible Multiple Sclerosis …
  8. Brain Scan To Detect Multiple Sclerosis, Other Brain Abnormalities
  9. Why medical research matters
  10. New MS Study Shows TYSABRI Improves Cognitive Impairment
  11. AB Science announces successful non futility test for masitinib in progressive forms of multiple …
  12. Study Evaluates Gilenya’s Impact on Central Autonomic … – Multiple Sclerosis News Today
  13. Women and men’s immune system genes operate differently, Stanford study shows

Continue reading

Use it or lose it!

Life with MS?

“60% blood to keep the phlebotomy department satisfied, 10% sweat, and 0% tears.”

When I’m told that 30% is missing, I agree.

“30% is memory loss, which rather proves a point.” Continue reading

Fake it ’til you make it!

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Close your eyes for a few seconds, and imagine the type of person I will describe to you.

It’s someone who has Samuel Beckett’s “Ever tried. Ever failed. No matter. Try Again. Fail again. Fail better” personality. Trying to bend negatives into positives. Seeing cause and effect in an ever expanding circle. Someone who 95% of the time, will not throw in the towel or run away because it’s the easiest solution. Perhaps a “mens sana in corpore sano” person, Latin for someone with a sound mind in a sound body. A non-drama queen (or king). It’s not someone who wants to be one tough cookie, it’s about being a whole tin of tough cookies.

Perhaps you are that tin of tough cookies, or you strive to be one of the cookies within the tin. Continue reading

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