Tag Archives: Facebook

Being active

Last week I received an invitation to take part in the 2013 National Meeting Day panel discussion on September 28th by the MS Society of Ireland. Needlessly, I accepted straight away as ‘Being Active and Interactive’ is something that lies close to my heart.

If you’ve been part of my blogging community for a while, you already know my online involvement in regards to writing about life with multiple sclerosis as an unwelcome passenger. Because of this, adding something worthwhile to a panel discussion about how staying active and being part of an online community can lead to a very fulfilling pastime – no matter how dull or uninviting it sounds – is something I absolutely want to be part of.

As a child and teen, being involved and fighting for the good for those less well-off was something I wanted to carry into my adult life. However, after moving from Belgium to Ireland in 2002, this activity was pushed away to work hard on my career. I studied, did lots of overtime and enjoyed every second of it. Continue reading

Blog Awards Ireland 2013

Yesterday I found out that a friend nominated me for an Ireland 2013 Blog Award. Needless to say I am chuffed, and blessed!

In return I want people to know how honoured I am to have gathered so many followers who are interested in what I bring. Even if you don’t blog yourself, you are the backbone of my reason for writing and I happily return the favour by reading and seeing your work. Reading individual stories often makes me chuckle and laugh, think and discuss.

Since there are only a few days left to vote for the Ireland 2013 Blog Awards, I have a favour to ask you. Since finding out that there is even such a thing like Ireland Blog Awards, I’d be totally in awe if you could nominate me in the Health & Wellness Category and/or the Personal Blog Category on this weblink here: http://www.blogawardsireland.com/nominations-open/. Continue reading

Sunshine Award!

sunshineaward_sm1Sometimes surprises arrive when you least expect it.

Just now I commented on dear Tink’s blog post on her receipt of the Sunshine Award, sending the comment and only then reading the entire blog post. That’s when I caught sight of my own nomination for the award (which is in fact the actual receipt if the award and not just a nomination). Continue reading

MS Awareness Week 2013

MS Awareness Week from
Monday, March 11 2013 to
Sunday, March 17th 2013.
Tell us why you connect on:
http://www.msconnection.org/

© WVE and Ireland, MS and Me, 2011-2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

Reality check!

This picture shows total lack of disregard of what other people have to go through in their lives.

I just saw this picture on a dedicated MS Facebook  page. It says “YOU WILL NEVER KNOW WHAT PAIN IS UNLESS YOU HAVE MS!!”

Well excusezmoi please, but that is just absolutely ridiculous. Life is NOT A CONTEST of who has more pain than the other, it’s not a game of showing people how sick we can be. So forgive me for sticking up for others who are ill (without MS), because statements like this only give people the wrong idea of what having MS is really like. Continue reading

An Open Letter To Those Without MS

I’ve known about this letter for a while now, and sometimes I feel the need to read it again, as if by reading it once more, people around me will understand what having an incurable illness feels like even when they’re not the ones reading it. However, at the end of the day, I cannot step in those people’s shoes and make them accept what is going on inside me. I am the first person that needs to educate my family, friends, ex-colleagues etc. I am the first one that has to tell them the same things over and over, and I will be the only one to know the truth about my own MS. I am my expert-patient and I will be the only one that will have to fight for my medical future, as no-one else can do it for me.

In the past I’ve said that having an illness like MS is a ‘lonely illness’. It really is, because there are no two people alike who have MS, so I need people to understand why I do the things I do (or don’t do), and I need them to accept and support me instead of judging me because of their preconceived and wrong ideas about my illness. So for that reason I am blogging the letter to those without MS, so they can learn about our life, our illness and our hopes, dreams and feelings. Continue reading

The stalker called MS

In my job I often had to do “root cause analysis” assessments on what went wrong with a certain account and how we could “cure” it again. I miss the term “root cause analysis” and I thought I’d do a one on myself, or my life. What the heck, it’s not like I have anything better to do on another dreary summer’s day in Ireland!

I suspect that my illness, the incredibly annoying stalker called Multiple Sclerosis, entered my system through a back door in the 1990s. I have to go back to around 1994 or 1995 when I worked in a library and I was having the time of my life, so it couldn’t have come at a worse time. I had a period of extreme fatigue and it turned out to be glandular fever so I was off work for a good while. About 5 years later I started showing MS symptoms that went undetected for another 5 years as they would come and go and I didn’t particularly find the time to get it checked out. Continue reading

Learning to be sick

The secret of learning to be sick is this:

Illness doesn’t make you less of what you were.

You are still you.

(Tony Snow)

© WVE and Ireland, MS and Me, 2011-2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

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