MS

Use it or lose it!

Life with MS?

“60% blood to keep the phlebotomy department satisfied, 10% sweat, and 0% tears.”

When I’m told that 30% is missing, I agree.

“30% is memory loss, which rather proves a point.” Continue reading

That thing people call ‘summer’

Poll results: heat sensitivity

2012 Poll results on how heat sensitivity affects people with MS

It’s here.

It’s back.

It’s demanding.

It’s rather like Dante Alighieri’s 14th century über-hellish epic poem. Anno 2015.

And I wish it was autumn already.

What am I on about? Only the thing that drained me so completely today that I never felt this depleted.

Ever. Continue reading

Positive MS News: June 2015

brain-animation-

There’s only one topic in the Highlight! part of the good news list this month. In my view, more private firms should be involved in clinical research, sponsorships of medical institutions etc. In essence, it’s in everyone’s best interests, i.e. everyone’s health, theirs included.

What’s your view on this? Answer below! Continue reading

Multiple Sclerosis: The First F____ed Fortnight

Willeke:

A very beautifully written post by my friend Emma, who goes over her first few hours and days after her MS diagnosis.

“There’s no doubt, it has been raw, it has been ugly with cursing and swearing, lost relationships dodgy decisions. But I everyday I make peace with myself, I give thanks that I have another moment to live. Because there were times when I didn’t see any hope. I was soaked in blood, sweat and the tears of a thousand years.” (Republic of Emma)

Continue reading below…

Originally posted on Republic of Emma:

The early days are the most ‘challenging’ as in it is like a dirty dangerous whirlwind where emotions, words and all sense of self goes whizzing around. The day I walked into Mullingar Accident and Emergency room, I was wearing my jeans and a t-shirt that had seen better days. Two weeks later, not only was that t-shirt gone, the Emma who walked into A&E had disappeared, stepped into a bizarre place of chronic illness and dis-ease.

Daring-Greatly2

Multiple sclerosis- multiple scars? I had brain damage? Those fifteen seconds, when those words went from the consultant’s mouth to my ears, a little part of me died… I picked up the pieces of my broken heart but I still think of old Emma sitting on the edge of the hospital bed and the new Emma, getting up and stumbling, in a post-traumatic shock way, into a new life, a new way of…

View original 272 more words

Medical terminology?

Image terminology

Click image to view Medical Dictionary

One of the many issues ill people struggle with, is trying to explain how or what their clinical symptoms feel like. Vice versa, and after another round of being a guinea pig during clinical excellence exams for already established doctors, it was clear that many people request non-medical terminology from their doctors also. Continue reading

MS Ireland: Hope & Empowerment

0480eb81-cea2-43aa-a6ba-7e028db14c361It’s not the first time I sit back at night and go over past moments that left me inspired and willed me forward to do more, much more.

As societies go, there’s a lot of goodwill in MS Ireland, our national MS society. There are also hard facts that tell you that this is a group of outstanding people working towards one goal only: to significantly improve the lives of those living with multiple sclerosis, including their families. Continue reading

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