Author Archives for Willeke

About Willeke

Quirky, tenacious, and neurologically compromised expat in Ireland writing about life with multiple sclerosis.

Early signs of MS

Image of blue eyeWhile discovered 150 years ago, the cause of MS remains unknown. What we do know is that nerve damage is caused by inflammation, but the cause of the inflammation is still unknown. This means that there is no cure yet.

Because of the different types of MS and the plethora of possible symptoms, 50+ symptoms can be linked to MS. Many people can therefore go undiagnosed for any length of time.

You may have a single symptom, and then go months or years without any others. A problem can also happen just one time, go away, and never return. For some people, the symptoms become worse within weeks or months. Some symptoms of multiple sclerosis are mild and cause inconvenience; others may be severe and debilitating.

Continue reading

WordPress Menu issues again

On the day that judging for the Ireland Blog Awards starts, WordPress‘s menus are scrambled again and are missing half of the whole menu.

Again chasing WordPress… so not fun!

Apologies to anyone looking for specific posts, am trying hard getting them back asap.

Up until 2am again fixing a large runaway menu on my blog. Need your help so. If/when you find broken links, menu issues or anything else that looks dodgy, can you please send me a private message on billie@irelandms.com?

Judging for the Blog Awards Ireland competition starts today… Argh! Not again!

Thanks.

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About Billie ThumbnailAbout Willeke

Neurologically challenged by MS and personally by her will to succeed, Willeke is a disability awareness advocate seeking to improve neurological/MS services in Ireland. By highlighting difficult issues that come with such a diagnosis, she hopes her tenacity can bring some dignity to people most in need of a modern, inclusive healthcare system that looks after every aspect of life.

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Positive MS News: July 2015

Image reseach methods

Because of the summer holidays, less positive news has filtered through. Either way, enjoy, and hopefully more next month!

Research

  1. Gene Regulating Treatment Response in Multiple Sclerosis Identified
  2. New Study Evaluates The Role of MRI in Monitoring MS Progression Multiple Sclerosis
  3. Nano-Drugs in Liposomes Could Treat Multiple Sclerosis
  4. Altered Immune Cells in Relapsing Remitting Multiple Sclerosis Patients Cause Reduced Immune Capacity
  5. MS Study Uses Findings on Quality of Life Issues To Develop New Confidence-Building Intervention
  6. Nutra Pharma Working on Pediatric MS Treatment Based on Venom Multiple Sclerosis News Today
  7. Identifying MS Gene Mutations Could Make Personalized Treatment Possible Multiple Sclerosis …
  8. Brain Scan To Detect Multiple Sclerosis, Other Brain Abnormalities
  9. Why medical research matters
  10. New MS Study Shows TYSABRI Improves Cognitive Impairment
  11. AB Science announces successful non futility test for masitinib in progressive forms of multiple …
  12. Study Evaluates Gilenya’s Impact on Central Autonomic … – Multiple Sclerosis News Today
  13. Women and men’s immune system genes operate differently, Stanford study shows

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Use it or lose it!

Life with MS?

“60% blood to keep the phlebotomy department satisfied, 10% sweat, and 0% tears.”

When I’m told that 30% is missing, I agree.

“30% is memory loss, which rather proves a point.” Continue reading

Fake it ’til you make it!

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Close your eyes for a few seconds, and imagine the type of person I will describe to you.

It’s someone who has Samuel Beckett’s “Ever tried. Ever failed. No matter. Try Again. Fail again. Fail better” personality. Trying to bend negatives into positives. Seeing cause and effect in an ever expanding circle. Someone who 95% of the time, will not throw in the towel or run away because it’s the easiest solution. Perhaps a “mens sana in corpore sano” person, Latin for someone with a sound mind in a sound body. A non-drama queen (or king). It’s not someone who wants to be one tough cookie, it’s about being a whole tin of tough cookies.

Perhaps you are that tin of tough cookies, or you strive to be one of the cookies within the tin. Continue reading

Older, and dafter too!

25596wallfAnother year older today, and another year dafter too.

Kookier.

Most definitely away with the faeries.

Never one to take myself too seriously unless needed, I am taking my new number in my stride. Having family and friends I love and who in return, seem to like me enough to give me a place in their own busy lives, is all I need to know.

Asked how I ended up in Dublin, celebrating my birthday in Ireland for a 13th consecutive year, is a recurring question. The answer? The bonkers idea since age 15ish, that life in Ireland was ‘it’, a dream so titanic in size I was afraid it might never work out. Continue reading

That thing people call ‘summer’

Poll results: heat sensitivity

2012 Poll results on how heat sensitivity affects people with MS

It’s here.

It’s back.

It’s demanding.

It’s rather like Dante Alighieri’s 14th century über-hellish epic poem. Anno 2015.

And I wish it was autumn already.

What am I on about? Only the thing that drained me so completely today that I never felt this depleted.

Ever. Continue reading

Positive MS News: June 2015

brain-animation-

There’s only one topic in the Highlight! part of the good news list this month. In my view, more private firms should be involved in clinical research, sponsorships of medical institutions etc. In essence, it’s in everyone’s best interests, i.e. everyone’s health, theirs included.

What’s your view on this? Answer below! Continue reading

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